On the cusp

Wow what a feeling as we wait on the cusp of a new year. The feeling of trepidation, the tenderness of maybes.

I’m sure you can all think back to March 2020 when we first went into lockdown. That feeling of temporary, if we do this now in a couple of months we will be back enjoying life to the max. Well I guess that wasn’t to be, 2020 was a year of sacrifice. Sacrifice from the NHS, delivery drivers, care workers, shop workers all the key-workers, they showed up so we didn’t have to. It was a year when we celebrated them, thanked them and was grateful.

Fast forward to 2021, the year I like to describe as our countries toddler year, tantrums were thrown, toys flung out of the pram. Rule breakers patting themselves on the back and lies spewing from those in power like a child on the waltzers after candy floss. It was a year of divisions and more sacrifice again from the doctors and nurses and the incredible NHS. A year of selfishness from those who assume they deserve to break the rules, that were there to protect all. Those that don’t care beyond themselves.

Yet and for the most part it was a year we had hope, the vaccine was created (thank you scientists). We had a way to protect ourselves and those around us. Yes some have decided that they don’t want the government to track them ( I mean they declare this whilst holding a mobile phone in their hand but hey ho) but for the most of us we celebrated a way to protect those we love. To protect the free and fantastic NHS service we have and try to have hope for a brighter future once more.

So where are we now, as I said before on the cusp, omicron has felt like a punch that is delivered to the back of a fighters head after the bell had rung and we were returning to our corners. Normality felt in our grasp then wham here’s another variant to add to the growing Covid 19 vocabulary. It sucks but again the hope is there in the science, can we just say thank you again to the scientists.

I have no idea what 2022 is going to look like, I pray that the vaccine rollout for vulnerable 5-11 year olds happens swiftly. I pray that the NHS and the care system gets all the support both financially and morally that it deserves. I pray for a new normality, one that has taken the lessons of the pandemic on board.

People matter not things.

Time is not guaranteed so love hard.

Gratitude is free, kindness is free.

We are more than the jobs we do, the money we make and the places we travel. We are more creative than we realise and hey maybe a few of us can now bake bread.

In all seriousness, we have all faced some mental battles, show me one person who hasn’t throughout this pandemic. If normality is ours again let’s not lose what we have learned in this time. Let’s not waste the painfulness, I mean growing pains hurt.

So as we ring in a new year, let’s go quietly in 2022 with hope, gratitude and kindness.

I wish you all a happy, healthy 2022.

Hope Day

Yesterday we received the news that the The Joint Committee on Vaccination and Immunisation have given approval for a low-dose vaccine to be offered to vulnerable primary school children aged 5-11 years old. This news has literally had me dancing around my sofa.

I finally feel hope that one day soon Daniel will be able to live his life fully again. This is something I have openly campaigned for and today my heart is so blessed.

Throughout this pandemic we have heard that Covid 19 does not adversely affect children and whilst this has been great news for the majority there have been thousands of parents, carers and children like myself living in fear.

My son Daniel has complex needs in total he has over 15 diagnosis and a number of them affect his immunity and his ability to fight infections. He has been hospitalised numerous times due to the common cold so you can imagine the fear Covid 19 has brought to our door. The only way I can describe it is that for the last 22 months I have been unable to breathe deep. The fear has closed up my chest in panic and anxiety and I know I am not alone. Thousands like me have lived in fear, hiding away, not living our lives fully to protect those we love.

Campaigning to get this vaccine has been hard, sharing my heart, my worries, my fears to the country in hope of having our children’s voices heard has been scary.

Yesterday’s decision has made this all worthwhile.

I have spoken about children like Daniel as the “forgotten children” today we can say we were not forgotten and we were heard and we were given hope.

I now have hope for a vaccine that will help protect my son.

Hope that soon Daniel will be able to live his life fully again. Return to school, return to his therapies, visit with his animals and get hugs from those he loves.

Yesterday was a good day.

Today is a Hope day.