So the official countdown for Special Kids In the UK camp has started.
Though for many it began the moment we pulled away last year.
How and why is this camp so important?
So special to the members of this charity?
Well to be honest its pretty simple.
For the most part we live our lives on the outside.
Exclusion is not only for our children but us the parents and families too.
In an ideal world I would be writing about inclusion and community but when your lives consists of endless hospital visits, medications, physio, adaptions, assessments and so much more.
The conversations are rather different to many around you.
Life is so very different.
This is why this camp means so much.
For a week each year we are inclusive.
We all understand.
We live on the inside of our own special world.
I am so excited for this years camp.
I can’t wait to relax in a place where I know people get it.
Where friends have become family.
I may not know everyone’s name but I know they understand my life.
I love the fact that this time next week we will be laughing around the communal BBQ.
Watching the men become BBQ kings.
You have never had a sausage until you have a Special kids in the UK sausage.
Yes i really wrote that ha ha.
Kids will be dancing in wheelchairs and jumping on bouncy castles.
There will be wheelchair races with screams of go faster.
Wobbly walkers and fun running battles where often the older show the younger how its done.
There will be tea parties with strawberries and cream, cakes and more cakes.
Dvd nights and wine fuelled chats under the stars.
I cannot wait.
My children cannot wait.
I am bias I do so love Special kids in the UK.
Some of these people have been my friends now for over 8 years, they have walked beside me through the dark times.
They have held me when I have cried.
They have laughed at me and with me.
Whatever the dally battle of raising a child with special needs brings I know that somewhere on that forum is advice and compassion.
I think Special Kids In the UK is unique, its not aimed at any particular syndrome or disability.
In fact many of our kids are undiagnosed.
It’s just a place that offers friendship and support whatever the situation or circumstance.
I love this crazy bunch of people.
We are so different yet so alike in our desire and drive to give our children the best quality of life we can.
So yes I am counting down the days to next week.
To when I get to pull up on that Field in Wem.
When I get to find my little place in this world that makes total sense.
The camping field of Special Kids in the UK.