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Rebel with kindness

"We carry with us, as human beings, not just the capacity to be kind, but the very choice of kindness" – R J Palacio

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Tag: Silent Sunday

Silent Sunday

On June 29, 2014 By rebelwithkindnessIn Uncategorised, UncategorizedLeave a comment

Silent Sunday

On June 9, 2013 By rebelwithkindnessIn Uncategorised, UncategorizedLeave a comment

Silent Sunday

On May 26, 2013 By rebelwithkindnessIn Uncategorised, UncategorizedLeave a comment

Silent Sunday

On December 23, 2012 By rebelwithkindnessIn Uncategorised, UncategorizedLeave a comment

Silent Sunday

On December 9, 2012 By rebelwithkindnessIn Uncategorised, UncategorizedLeave a comment

Silent Sunday

On October 14, 2012 By rebelwithkindnessIn Uncategorised, Uncategorized1 Comment

Silent Sunday

On October 6, 2012 By rebelwithkindnessIn Uncategorised, UncategorizedLeave a comment

Silent Sunday

On September 30, 2012 By rebelwithkindnessIn Uncategorised, Uncategorized2 Comments

Silent Sunday

On September 16, 2012 By rebelwithkindnessIn Uncategorised, UncategorizedLeave a comment

Silent Sunday

On September 9, 2012 By rebelwithkindnessIn Uncategorised, Uncategorized1 Comment

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Well you know those times where you blog your thoughts openly, no oh it’s only me 😳.

The Daniel look xxx

When you wake up early, read something that challenges you so you write a blog post. I’m sure this normal behaviour for most. Link in my bio xxx or visit me at http//:rebelwithkindness.com

I could not let #rarediseaseday pass without sharing my beautiful rare girl Olivia. My sweet beautiful girl who lost her life to a rare disease Rett Syndrome. I remember vividly a Dr searching through a book on diagnosis searching for her syndrome because he hadn’t a clue, he hadn’t heard of it. I think this is sometimes the hardest part when dealing with a rare disease the limited knowledge at times of those who you turn to for help and support. The experts are often not in reach. Rett syndrome is becoming wider understood mainly due to the fantastic work of charities like @reverserett @rettuk raising awareness and understanding. Yet all I know is that the loneliness and fear feels as raw today as it did then. Rett Syndrome is a neurological condition which most often strikes previously healthy little girls between their first and second birthday, leaving them with multiple disabilities and medical complexities for life. Rett Syndrome is a thief in the night. It stole my daughter and a piece of my heart.

So after a conversation with Daniel about how today is show your zebra stripes for #rarediseaseday he has decided he is going to be a belted Galloway instead. I give up, can someone please just buy us land a cow or two 😂😂. More information on Daniels rarity and not just his #cowstalker rarity in our stories xxx

Bedtime reading our new book from @shareastarcharity thank you xxx

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