Perfect sense

I was restless last night as I sat and tried to catch up with my weekly television programmes. I just couldn’t relax and I didn’t know why. 

I checked the oven, the doors and my diary but I just couldn’t work out what I was missing.

Then it hit me. 

I was listening out for Livvy, somehow I had stepped back in time to seven years ago. The Friday night ritual of Alan going out for the evening and me staying in caring for Livvy.

My mind was listening out for her noises. Her gentle snores or crazy giggles.

I was even waiting to eat with my sister and have one our much missed Friday night chats.

For those few moments I was in my before time. 

Before my heart broke.

Still I wasn’t allowed to stay for long.

Only seconds later the pain overwhelmed me. 

Like shadows slowly consuming the light.

My heart was beating so swiftly, my brain pounding against my skull.

Raw open wounds.

I don’t know why our brains do this to us? 

Flashbacks to moments we cannot hold on to.

Memories so real you can almost touch them.

I cried last night, gut wrenching sobs of missing.

Time really doesn’t ease your pain. 

I was so angry, the frustration of being able to do nothing dominated my mind.

Why,

Why,

Why?

Finally I could cry no more, my soul was empty, my tears exhausted.

I know I cannot go back, 

so many ways and so much time. 

But for that brief moment then I wasn’t broken.

For those few minutes life made sense.

Perfect sense 

First Aid Waves

The last two days have knocked the crap out of me. What I thought was just going to be a normal run of the mill First Aid course has actually be a major trigger for my grief.

Sitting there in the conference room when asked if anyone has ever used CPR my heart started to pound within my chest. 

My mind left the conference room right then, I was there back in the moment, the moment I have tried so often to forget. 

I breathe deep, drink a little water and try to bring myself back to the here and now.

Seizures “anyone saw a child seizure”, what ?? 

Yes too many.

Choking, Yes

Severe vomiting, Yes

Sometimes I don’t realise how much in life I have seen. Raising a disabled child opens you up to a world of medical practices, symptoms, treatments that many others will never face. 

Losing a child tragically, well let’s not go there. 

Too much 

and it just blooming hurts.

I’ve had to bury my head the last couple of days. 

Allowing the waves of grief to flow over me. 

Trying to change the horrid memories for good ones.

Burying them I guess.

Yet they won’t ever leave me.   

But life has to go on, 

I have to get my first aid certificate and will need to get it again in three years.

This is a requirement of the job I love.

So I ride the waves, 

Holding on tight to the good memories and learning to swim harder through the bad.

  

Grief is toxic 

I have travelled many roads in life but none has been or ever will be as long as grief.

Grief is a journey of twists and turns with gradients that rise and fall in a blink of an eye.

Sometimes the road is straight and the driving is smooth, then others are bumpy and hard to travel.

I honestly have no directions on this journey, I am beyond lost.

There are no guidelines or signs to help me through.

I’m just stumbling in the wilderness.

My heart is broken by loss, its torn apart by separation.

It crumbles a little more each time I see my children cry.

When they miss their sister.

When they ache to hold her. 

Grief is toxic.

It has no constraints, like a force beyond nature it invades the souls of many.

It cares not about age, about understanding.

From the young to the old it destroys.

I often wonder how to survive grief?

How to fight against an enemy so strong?

What weapons do I have?

Yet my heart is the victim and also the aggressor.

As it is torn apart by grief it still grows in love.

Love is an arrow that shoots into the very heart of grief.

The only defence.

The only attack. 

For once loved, one can love again.

For once loved one can hold on.

Though memories that curl around our hearts armour against destruction.

Grief may win many battles.

But it will not win the war.

Our Love will always conquer.

Because I was and always will be Livvy’s mom.

I knew her love.

I have her love.

In honour of Livvy

Saturday was an amazing day, we held a Livvy’s Smile Donkey Tea Party.

The sun shone for us, the donkeys behaved and memories were made.

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I had a truly wonderful time.

I got to catch up with old friends and make some new.

I got to listen to laughter as it filled the air.

I got to watch children cover themselves with chocolate and cream as they ate their cakes.

Donkey rides, cart rides and so much more.

Seriously it was awesome.

Yet as I sat at home editing the photos from the day my tears began to fall.

My heart just ached for the missing piece of my puzzle.

Whilst I was blessed with some amazing hugs from some truly incredible children my heart yearned for my little Tinkerbell.

Birmingham Donkey Sanctuary holds a special place in my heart.

Each corner is filled with the echo of my Olivia.

Those first steps she took defying the Drs.

The giggles as she rode her favourite donkey.

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The dirty looks she gave Amber when told to sit up straight.

So many moments, so many memories.

 

I was asked why we started Livvy’s Smile and why I hold events that bring me pain?

It is simple really we started Livvy’s Smile because we are so grateful.

So thankful for the wonderful memories we have stored from Livvy.

Memories that truly get us through the darkness and we just want to give that light to other families.

On Saturday we created those special memories full of chocolate eclairs and cool moms.

Memories that will give us hope through the hard times.

Why do I it when it causes me pain? 

Because I can and because I have to.

I was blessed to be Livvy’s mom, to get to call this amazing girlie my daughter.

Livvy changed my life. 

The realisation that we didn’t have forever taught me to live in the here and now.

To live a life full of laughter and love.

 

So yes hosting these events will always be bittersweet.

I’m sure I will always return home and cry for the missing piece of my heart.

But I will never stop working hard to create memories because each moment, each memory is in honour of my beautiful daughter.

Every smile I see brings her closer.

 

Yes, I know my heart will always ache,

Grief is relentless.

Like a snake it slowly twists around your heart until you cannot breathe.

Your body craves for one more breathe, one more moment.

So as the tears fall I know they do so in honour.

Each teardrop is formed in everlasting love.

Livvy is part of who I am and who I always will be.

Livvy’s Smile is testimony to eternal love. 

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I promise

The beautiful Katt from The Curvy Cupcake  inspired the amazing  Debz at The Not So Secret Diary of a Wannabe Princess to set us all a challenge, the #PlusSizePromise.

The challenge is to blog five promises that we make to ourselves this summer.

Here’s mine.

 

1. Get my legs out, I’m tired of being hot and bothered every summer. This year I’m going to get my milky white legs out and let them breathe.

get my legs out

 

 

2. Take time out for myself. This is something I really need to work on, I need to say NO a little more and give myself some quality time, to read, to enjoy a meal with friends, a nights of dancing and copious amounts of alcohol

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3. To not back out.  I can list you a million reasons why I shouldn’t do something. This summer is the start of me doing less of this. I want to be positive and believe in myself. I CAN DO THIS.

Icando this

 

4. Its not always my fault.  I am so good at blaming myself that it could be considered an art form. I’m happy to blame myself from anything from a squashed spider to a natural disaster.  But guess what it’s not always my fault and this is something I need to learn.

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5. More time for us. To spend some more quality time with my husband. After twenty years of being together we need to start carving time into our schedule for quality time. More romantic meals, walks, cuddles.

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So here are my five promises.

Why don’t you join in x

 

Trigger points

I remember reading an article about the effects of grief on the mind. How many grieving parents, loved ones could suffer from a form of PTSD.

Post traumatic stress disorder is often though to be only related to soldiers, those many brave men and women who come home battle scarred. Who have seen more than most could imagine. I for one am not disputing how terrible and awful this is. Still it is true that post traumatic stress disorder can occur for different reasons. It could happen to a victim of a crime, a witness of a traumatic event a harrowing close call , etc.

So yes I can see grief causing PTSD in fact let’s be honest I think I could venture out and say that grief could actually be at the heart of it. Grief is the extreme sadness at the loss of something and in all cases I have mentioned there is an element of loss.

Soldiers have lost part of themselves through all they have witness.

Victims of crime have lost part of themselves to the perpetrator.

Whatever has happened, who ever caused it the event has taken away who you were before it. So yes you have lost a part of you.

I know I lost a part of me when Livvy died. I changed right there and then. I could never go back to the person I was before. I had lost my daughter. How could it not have changed me? What greater loss is there than the loss of a child?

This article was trying to get people to really understand how badly one could be effected by grief. How what some would state as a mental condition is actually also a physical condition.

How we need to accept and understand our trigger points.

Personally this all made sense, I know there are places, smells even people that cause my heartbeat to race. That when I am at a certain place or I smell a certain aroma ,I see or hear certain things I am transported back into the time when I was there with Livvy.

This is often beyond just memories, take for example the local emergency unit I cannot enter it without feeling nauseous. It was there I left my beautiful girl. Even now still the siren of an ambulance makes me tremble.

Triggers aren’t always expected either they can hit you when you least expected. Like only the other day when I was at the children’s hospital.  I was sitting there minding my own when a girl passed me with blond crazy curls. My body shook and  I could have just sobbed right there and then.

Being truthful I had expected to be little upset. I had spend so long in this hospital with Livvy. I could see her in the corridors, the cafe everywhere. So maybe my body was primed, but blond curls, seriously.

I actually had to pinch myself to stop me from falling apart. Here I was trying to be brave for my foster son, losing it wasn’t an option. Well, it wasn’t until a few hours after when in the privacy of my bedroom I could let the tears fall.

I guess why I’m sharing this is because sometimes we need to understand our minds and our body’s and how one can seriously effect the other. Also I think we need to be kind to ourselves a little more.

Grief in any form is a powerful thing. Maybe you are grieving the loss of a friendship, job, marriage. Maybe like me you heart is forever broken by the loss of a child. I don’t know. Yet understanding that this loss changed you is the only way you can more forward. It’s not easy and their will always be triggers but to put it simply life goes on. Even when at times you don’t want it to.

Listen to both your mind and your body and understand that sometimes being brave isn’t an option.

be kind to yourself

Thank you doesn’t seem enough.

I’m not sure how I am feeling right now, yesterday was a whirlwind of emotions. I laughed, I cried and I laughed some more.

There isn’t really a guideline on how to feel I guess, no instruction book on how to celebrate birthdays of those that never reached them.

I know some think i’m strange, that to celebrate the birthday of a child that has passed is wrong or odd. That’s ok, everyone is completely entitled to their own opinion and the fact is grief is so unique. Nobody feels the same, everyone has their own journey through it or as I believe ‘with it’.

I’m struggling to find words to describe yesterday it was one of the hardest days of my life but also one of the most blessed.

From the moment the clock struck the new day the messages started to flood in.

Birthday wishes for my beautiful girl.

Messages, pictures and names drawn in the sand my girl was remembered.

Friends all over the world wishing my girl a Happy 16th.

Yesterday was a blur of family, friendship and cake, it was a truly special  day.

It is only now as I sit back and reflect that I really realise how completely amazing it was.

I could not thank people enough for what they gave me yesterday. After many nights of wondering and worrying that my Livvy would be forgotten my heart was swollen by the love I felt and the amount of people who remembered her day.

The fund-raising event for the charity formed in her memory Livvy’s Smile was a great success I don’t yet have a final total raised but I know its in the hundreds which is so wonderful.

Besides the donations I also want to say thank you to those who ate cake with their friends and family in honour of this day. I know I harp on a lot about this but memories are the greatest gift we can give ourselves and I am so blessed that you all made new special ones yesterday in honour of my girl.

So yes I’m not sure how I am really feeling today but what I do know is that my heart is full. My girl was honoured in such a beautiful way and for that I will always be grateful.

Thank you doesn’t seem enough but THANK YOU.

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