No more empty arms

I’m been thinking a lot about the fact that it’s Rett Syndrome awareness month.

Thinking about what it is we actually want to achieve.

Fundraising – yes

Awareness of the syndrome – Yes

Yet for me I want something more.

I want no mother and father to face the pain Alan and I have had too.

I want no brother or sister to cry themselves to sleep missing their sister.

Grandparents heartbroken.

I want no more empty arms.

So I decided that this month this is what I wanted to focus on.

Raising awareness and fundraising so that no mother or father is left with empty arms.

Rett Syndrome means I will never hold my daughter again.

So I’m challenging you all to help me raise awareness of this devastating condition.

Please take a photo of your child in you arms and upload it to your social media sites with the hashtag #nomoreemptyarms

Join me in raising awareness for Rett Syndrome.

Join me in stopping the pain.

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Also if you wish please consider donating to one of the Rett Syndrome charities.

Reverse Rett

Cure Rett

Or Via Olivia’s Page @ Girl Power 2 Cure . –

Green fingers

My garden never used to be anything but a place my children could play. I was never excited about flower beds or hanging baskets, it just simply wasn’t me.

So imagine my surprise when this year I started noticing all the different plants and actually enjoying a wander around the garden centre.

I think it may have something to do with this.

 

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The “Olivia” rose from David Austin Roses.

I came across this beauty by chance and it blessed

 

my heart that something so beautiful shared my late daughter’s name.

Of course I had to have one and now my garden seems to be coming alive thanks to this beauty.

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It is just stunning.

This rose has spurred a new interest for me and now look what else I have.

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Who knows maybe I do have greenfingers after all.

 

Another child lost.

For the last few days we as a nation have been following the news from Edinburgh intensely. Praying and hoping that little Mikaeel Kular would be found safe and well. Yet in the early hours of yesterday morning we heard the news we had dreaded. The worst had happened the body of three year old Mikaeel has been found.

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Another child lost.

Why, how, why?

My heart is aching.

Why do we have to lose another one?

The news today is full of his mothers arrest and social media is full of anger but to be honest my heart is just full of pain.

I don’t know if his mom has committed this terrible crime and its not for me to judge. That is all down to the police and the justice system. All I do know is that another life has ended too soon.

I cannot get my head around crimes like this. I would have fought to the death for another moment with Olivia yet so many take a life so easily.

I watch my friends sit at the hospital beds of their sick children praying for miracles yet the news is full of abuse and childhood thieves.

Why?

Why are so many trying to save when others are willing to slaughter?

I’m struggling right now.

I’m missing Livvy so desperately I can barely breathe.

The news of this little boys passing is bringing it all to the forefront of my mind.

Not that it ever really disappears.

Livvy is the first thing on my mind as I wake and the last thing when I fall asleep.

Losing a child is a pain like no other.

Its a journey no one wishes to travel.

Yet

Others choice to join it.

Is the pain the same?

I don’t know how it could be.

Maybe I’m being cruel I honestly don’t know but I miss Livvy with every piece of my heart.

Can you miss the one whose life you have stole?

I’m sorry, I’m angry.

I’m thinking of every one of my friends who are grieving right now and thinking of how much they would give to hold their children again.

Where is my compassion?

I don’t know peoples stories,

I don’t know their struggles.

All I know is a child has lost his life and that whatever the reasons this is wrong.

Rest in peace Mikaeel Kular.