A mom or a referee?

Sometimes I feel less like a mother and more like a referee.

Always negotiating, enforcing rules.

Image courtesy of vectorolie / FreeDigitalPhotos.net 

Everyone warned me that it could be like this but I never expected a war zone to be found in my living room.

I love my girls and while I accept that growing up and finding their freedom is part of life’s journey. I’m not happy that they have decided each day is an opportunity for a battle.

How can they go from being best friends to worst enemies?

Seriously it’s driving me mad.

I am proud I have raised such independent spirited young woman but hey please let them take on the world and leave their poor mama alone.

I am tired and emotionally shattered with this parenting stage.

Reminiscing and yearning for the days of night feeds and dirty nappies. I may have been exhausted back then but at least they didn’t answer back so much.

I know its a stage that all go through and one day my beautiful kind caring girls will return and the dragon headed all knowing beautiful monsters will disappear but its so not easy.

Image courtesy of AKARAKINGDOMS / FreeDigitalPhotos.net
Image courtesy of AKARAKINGDOMS / FreeDigitalPhotos.net

I recognise this year is going to one of big changes, university, college it certainly is  going to bring a new dynamic to the relationships of the girls.

A new dimension in their sisterhood.

I’m praying a little space will make hearts grow fonder.

Who knows?

I guess until then I will resign myself to the role of mediator for a little longer.

So does anyone have a whistle?



Oh I had this image of the mama I wanted to be.

The clean house, cake making, hug giving kind of mama.

My children were going to grow up safe, secure ready to take on the world.

I didn’t prepare for disability

I didn’t prepare for loss.

I didn’t prepare for life.

How can I expect them to be ok?

Who is actually ever ok?

Does ok really exist?

We are a world full of rising mental health issues.

Where are we going wrong?




This is what the media wants us all to believe. 

You have to be perfect.

From the perfect new born mother with linen wipes and organic baby food.

To the teenager starving to fit in the new fashions,

We cannot be perfect

No one can

But that does not stop the world trying make us believe otherwise.


I am a messy mother.

I mess up.

I shout, I scream, I forget to wash sports kit or sign permission slips.

I lose my patience when I’m tired and crave some peace and quiet.


My husband is a messy father

He forgets to listen properly and is surprised when they kick off.

He laughs at boy troubles not in mirth but in ignorance.

Scared that they are growing up.


Then my girls 

They are the most perfect imperfect children alive and i love them for it.

From the stroppy tantrums to the banging of the doors.

From the constant arguing to the solitary against the parents.

The demanding of attention to the leave me alone moods.

They are messy

and thats perfectly ok.


Life is a constant lesson

Each day brings with it a new piece of knowledge and new understanding.

Yet how can you learn if you know everything?

How can you form if you are already perfect?

It’s time we ignored who others wish us to be.

Turn off the televisions and leave the magazines on the shelves.

Lets grow into who we wish to be not what is expected by others.

Let us all be beautifully imperfect 

Lets all be messy





What !

How in the world would you be fifteen?

Time is flying away from me at such a rate.

I want to press stop and then rewind.

I’m trying hard to imagine you as a 15 year old.

I think you would give your sisters a run for their money in the stroppy teens department.

What kind of clothes would you wear?

Would your hair be as wild?


So many questions that will never get an answer.

I want to say it’s unfair.

Stamp my feet in a rage.

But it’s gets me nowhere.

It’s doesn’t bring you back.


So I’m going to honour you my sweet beautiful girl.

I’m going to do as you did everyday.

Be strong

Be brave

And smile.

I going to host a party in your name.

Invite your friends old and new.

We shall laugh

We shall cry

There shall be fun

and there will be joy.

Memories made and cake eaten.

Just as you would have wanted.

In honour of your birthday


In memory of you

My beautiful Olivia

Happy 15th Birthday Livvy xx</strong<

We Love you sweet girl

To the moon, stars and back xxxx


Being kind isn’t easy.

Being a parent is hard especially when your children are struggling. My maternal instinct wants to jump in and to fix everything. Yet sometimes
you have to step back and allow themselves to find their own way. It’s allowing them to grow and learn.

But as I said it isn’t easy.

My youngest daughter is struggling right now, the maze that is friendship is leaving her feeling lost and confused.

The problem is she has a kind heart.

How wrong is that statement?

A kind heart should never be a problem but when dealing with the emotions and complications of friendship it can cause you a lot of pain.

When you want everyone to be happy.

When you want kindness to be the overwhelming emotion in a cruel world.

My girls have been through so much. They have faced so much pain in their short lives and it breaks my heart that they have suffered so much.

They have such compassionate hearts which makes me as their mom so proud.

I just hate seeing this compassionate heart causing my little one so much pain.

How do I protect her?

How do I ask her to stop caring, to not worry about others?

I can’t can I?

We are on a journey searching for balance right now?

Trying to even the scales between kindness and protection.

I cannot bare to see my little girl in pain. Yet she cannot bare to see sadness in others.

How do I teach a child who wants to fix that not everything in this world is fixable?

How do I protect her sweet heart?


Dear Olivia – 5 years too long xxx

Dear Olivia

Today marks the 5 year anniversary of your death. Anniversary sounds so wrong. Its meant to be the celebration of something. But I don’t celebrate your death, how could I when the missing of you has left my heart beating to a broken beat.

I can try to celebrate your life but even that isn’t so easy when all I want to do is scream that a life lived only for nine years isn’t enough.

Though as quote states “life is not measured by the breathes we take but the moments that take your breathe away.”

Now these are the moments I can relate to. Those one in a million moments that’s you packed into your short time here in this world. Those crazy moments that filled our hearts with such overwhelming love.

From the moment you entered this world you lived life with a purpose that I am only yet understanding. 

You came to change. You changed me, your dad, your sisters, grandparents and so many more.

Anyone who had the blessing to know you left being touched in a way we still cannot find the words to describe. 


People have told me you were an angel and thats why we only had you for a short time. I’m not sure if an angel is the right description but you certainly was my inspiration.

I watch the videos of you and look at the photos and its as if I can almost touch you. I try to convince myself that you are just in another room and try to hide my heart from the truth that you have gone. I play the clip we have of you laughing and close my eyes. Its as if for that moment you are right there beside me. I hear your laughter, I feel your presence.

I still don’t understand why we had to lose you. If there is a bigger picture I cannot see it. I am so thankful for my faith as its the only thing that gives me hope. The promise that we will be together again.


Your sisters are so grown up now. Kennedy is preparing for university next year. I tease her about leaving home but its going to be hard. Every since I lost you I am so scared for them. I want to wrap them up in cotton wool and keep them safe.

Do you watch over them?

They all miss you so terribly each in there own way. Brodie hurts desperately she misses her partner in crime so much. I remember how wherever we went she shared the moment with you. Pushing your wheelchair so you could see things.  Do you remember the penguins? How you loved to sit and watch them. You in your chair and Brodie by your side. Dad and I was convinced we were never going to be able to leave. You were transfixed, giggling as they splashed into the water.

I still can’t believe its been five years, my heart still feels like it was yesterday. So raw inside. 

Grief is a funny thing, I don’t understand how its supposed to work, “time is a great healer” is the worst lie I have ever heard.


I often find myself wondering about heaven. Is that crazy? I wonder what its like there for you. I take comfort from the fact that my grandparents are there with you. I know Grandad is looking after you for sure. I remember saying to your dad when your were diagnosed how much I wish he had been here then. How he would have been your best friend, the hours he spend teaching me to read, count and write would have been there for you too. He would have learned all about Rett Syndrome and all about your therapies. I know that you are free from Rett now but I do hold the fact that he is there with you in my heart.


These last few years your best friends have joined you. I hate that their parents are feeling this agony but I know that between you, Ryan and Rachel there is a lot of laughter in heaven.


Livvy this is so wrong. I should be lying on the sofa right now holding you in my arms. You should be sending sweet looks over to your dad for his chocolate.


Its all so wrong but its whats happened and what we have to face. 


You and your sisters are my inspiration. You all are the reason I wake each morning knowing how blessed I am.


I miss you honey so much it physically hurts but I am trying so hard to make you proud. Trying to make a difference in the lives of others just as you did.


You are my inspiration, my hope!


Livvy five whole years has passed since that fateful morning. I still have flashbacks now.  Could I have done anything?  Why my girl?  Why my daughter?


I have no answers.


But regardless of the whys I still give thanks.


I am so thankful that I got to be your mom.


 I am so thankful for the nine years I got to love and care for you.


I am so thankful.


I miss you my beautiful girl and I will continue to miss you until we are reunited.

 5 years too long xx

My heart beats to a broken drum.

My life’s jigsaw will alway be missing a piece.

My beautiful, adorable minx how do we survive with out you?

I am trying my very best.

What I would give for one more day, one more moment.

Five  years missing you , is five years to long.

I love you my baby girl.

My sweet precious Tinkerbell.

Until forever.

I love you to the moon, stars and back again.

Mom xxxx





I’m only human

Sometimes I just get so fed up of expectations.

What others think I should be doing.

Only yesterday I was moaning about needed a break from life.

From the arguing of my teenagers. The constant roundabout of general day to day issues.

I just wanted a night out with my girlfriends.

When a email I received about being ungrateful really struck at my heart.

Also it told me I should know better really hurt.

Yes I am a bereaved mom and yes I cherish my children

But I am only human.

Losing Livvy didn’t turn me into a saint.

I still get frustrated at my teens.

Still get cross when they act all entitled.

I’m human.

Also none of these feelings ever stop me loving them any less.

It’s ok to need a break now and again.

It’s ok to have a need to be called Sara rather than mom.

It isn’t failing at motherhood.

It isn’t taking my children for granted

It’s being normal.

Today my daughter should be 14.

Today you would have been 14.

We would be all gathered together as a family to celebrate your special day. Spoiling you with attention and of course lots of gifts.

Yet we can’t.

Instead there will be an empty place at the table and all that we have to hold on to are our memories.

Each with a moment,

a memory, a gift that we cherish.

I confess I’m angry that I can only visit your grave today.

That I cannot hold your hand or stroke your beautiful blond hair. To twist one of those cute little curls around my finger.

To hold you close and share those light butterfly kisses.

It hurts,

I want to sing happy birthday to you and get to watch your eyes shine with laughter.

I want to watch you rip off the paper from your presents with impatience and excitement.

14 years old

I often wonder what you look like now.

How have you aged?

Is your hair still as curly as it was or has in grown down long and straight.

I wonder what you would have enjoyed if you were here, would you be a one direction fan? knowing you It would more likely be Paramour or the script. You loved the beat of rock music. Guns n roses were your favourite.

I can imagine you in band tops joining me in the love of anything gothic.

How I wish , how I wonder.

Its breaking my heart today, you should be here blowing out your candles. Trying to grab the biggest piece of cake. Loving all the attention this special day brings.

I know you would be cross at my sadness,

But my beautiful girl I miss you so much.

I’m angry that I have only had 9 of the 14 years.

Losing you is a pain like no other, a knife in my heart forever being twisted deeper.

I take your balloons, your flowers to your grave and the knife goes deeper.

But I think of you dear Olivia, I remember your courage your true audacity to never give in.

I close my eyes and hear you whisper on the wind.

I’m here mom, I’m playing with the balloons and smelling the flowers.

I’m here mom, by your side everyday.

Dry those tears mom, listen to my laughter as it carries on the breeze,

Feel my love wrap around you in the warmth of the sun.

I’m not gone, I’m just out of sight for a while.

Hold on mom, please hold on to my spirit and my strength.

I close my eyes

I feel you in the sun and I wrap myself up in the breeze.

You are my heart and as long as it beats you are with me.

I miss you sweet Olivia.

Happy heavenly birthday

14 today,

I love you to the moon stars and back again xxxxx