Care

It’s 3am, I’m exhausted but my son just cannot settle. The awful panic attack he had earlier today at school is fresh in my mind and on my heart. The constant swallowing he is doing makes me realise we are not fully over it. The professionals are calling it separation anxiety, I just call it heartbreaking.

I hate that his history has such an impact of his future. How lack of care can leave such fear?

I’ve read the adoption books, studied to degree level the trauma publications, but none cover him. The complex medical missing in the pages of attachment and trauma. I guess children with complex needs don’t suffer with emotional issues, cue a eye roll of frustration here.

It’s strange but sometimes I feel guilt for not being there at his birth, absurd I know but how my mama’s heart wished he had never to feel unsafe, alone, abandoned. I do wonder if other adopted parents feel this way? I know it’s not rational but love and rationality don’t always go hand in hand.

Oh my heart, how I love my boy, my exhaustion right now pales in my love for this sweet sweet boy. Oh how I wish my love could stop the pain, would take away all fear.

My arms ache, he isn’t a baby anymore, his weight is heavy on my shoulders. His fear is heavy on my heart.

I can hear his breathing now, he is falling deeper into sleep. I need to follow him tomorrow is a busy day.

I’ve spent sometime tonight praying over him, my prayers seem to bring him peace. I ask God to heal his fragile heart, to take away his fear but mostly I give thanks that he found me. Thanking God for the honour of caring for him and the gift of loving him.

Joining in again with five minute Friday.

Intention

Day 2 of #hopewriterlife

Intention

intention

noun [ C or U ]

UK /ɪnˈten.ʃən/ US /ɪnˈten.ʃən/

B2

something that you want and plan to do:

[ + to infinitive ] It wasn’t my intention to

Intention something you want or plan?

Do you want to know a secret?

I’m scared of intentions, even those made with the best at heart. I’m fearful for making plans. It’s something I was trying to work on then Covid came to visit and how many plans have had to change, stop.

Growing up I struggled, I lived with a lot of broken promises, shall we do this next time forgotten by others not by me. Financially issues didn’t always allow things to happen that I could understand but sometimes out of sight out of mind was the stronger inflection.

So when plans were made I didn’t get excited I didn’t trust. So intention is something I hold at a distant.

Being a mom of a child of a complex child I know the best intentions can be easily changed only last week our holiday, our plans were cut short. But somehow that’s different that’s not through disregard or lack of respect.

I seriously struggle to make plans because I know my life circumstances often lead to cancelling or changing and I hate that someone things I cannot be bothered or do not care. So I stay hesitate and often say no in fear.

To me the word intention holds a responsibility to try and so when spoken by others I’m guarded. In therapy my goal was allow myself to get excited and I was almost there then blooming Covid came along.

I do want to know the joy of waiting, the excitement of what’s coming but for now I’m still a long way off but my intention oh the irony is to try.

Desperate

I woke last night screaming, somehow my sleep had become a time machine and I was there again in the hospital begging my child to wake. Desperate to see her chest rise again, begging the Lord to save her.

How can 12 years just disappear in a moment?

Yet I know in grief, time is only my enemy.

I miss my girlie so much, how I wish I could just hold her in my arms once more, to just breathe in the sweet smell of her hair.

Grief is a complex devil, playing games with your heart moment by moment, memory by memory.

Does it ever end?

Only with eternity I guess.

Oh I never knew the heart could survive such pain. The crushing weight becoming bearable against my wishes.

I don’t want to sleep again, I had to leave her once I’m not sure I could do it again.

Why does your memory invade your dreams?

Is there nowhere free from grief?

I couldn’t pretend for a while, I could not create the facade of being ok in those darkness hours. So I let the tears fall and as my whole soul hiccuped through my body I allowed myself to miss her.

I let the memories swarm my mind like a tapestry of bees as they create their honey, I created my moments again. I held her in my arms, I heard her sweet giggle of mischief on the symphony of the night and I breathed her in deep and I sobbed.

I still don’t understand why I had to lose her, why Rett Syndrome had to win the battle for her life. Yet I know it wasn’t for the lack of love. My Livvy, their Livvy, your Livvy was loved with the depths of so many hearts.

If love could have saved her life she would be here.

No the question still stands unanswered, our hearts still forever broken.

I couldn’t breathe anymore the tears had tore my soul and I did fall into an exhausted sleep.

I wake still desperate to hold my daughter once again.

The new day begins,

I trust, I breathe and I hope.

Until we meet again my beautiful girl, until.

Joining in again with five minute Friday, set your timer for five minutes and write.

Let’s banish “I’m fine”

I swear my body and mind are in conspiracy to drive me crazy. My body aches and I’m so tired I can barely keep my eyes open. I finally fall into bed and ping, my mind starts its endless racing. Have we done this? Did you remember to do that? What about this? What about that? What happened, what if this happened oh my goodness please stop.

I read a post the other day, a friend not a close friend we haven’t met but someone who matters to my heart reached the darkeness and her world was so dark we nearly lost her to it and my heart broke. Yes the joy of the nearly was full of gratefulness but the sadness that the facade of social media had not let us see their pain.

But it’s hard isn’t it, to raise your hand and say I’m struggling.

I call it my advance and retreat. I try to be honest, to be brave, to be raw then in the morning light my weakeness fuels my shame.

I should be coping

I’m so blesssed

Others have it worse

Be grateful

Others have enough on their plates

Don’t put on others

Stop being dramatic,

This last statement is my core enemy.

My childhood was full of being told I’m to dramatic, to emotional, too much.

Even now the narrative is different yet still hauntingly the same, you care to much, what if doesn’t happen, let it go.

Still shame based observations of my heart.

You see we are all unique and whilst the stiff upper lip is so celebrated it is also the weight that holds so many people down.

We should be taught from an early age to be open and honest. Tender hearts should be celebrated, anxiety understood, overthinkers heard.

Our children should learn from day one that the way they feel is perfectly ok. If it doesn’t make sense to others that’s also fine, that the world would be a boring place if we all thought and felt the same.

But we aren’t are we, our children are taught by rote, uniformed to be, to do, to fit.

To be seen and not heard once held by parental control now often controlled by technology.

Yet we should know better, with the ever increasing levels of mental health issues we should be better.

“I’m fine”’should be banished from everyone’s vocabulary. “Are you ok” should be asked with truthful concern. We should listen deeply and we should take time to care.

Yes the world is a busy place, yet the viewing numbers of the last reality programme proves we have time. Yet it’s easier for us to invest in the loves and lives of those we don’t know because no effort is needed. So yes we have the time or can make time to check in on those that we know and should care better for.

So why don’t we ?

I know I need to do better, I need to reach out more, when a friend goes quiet just check in. But I also need to be honest to create a place when it’s safe to speak our truth.

To not hide behind the illusion that’s I’m ok when I’m not. Someone once told me that they couldn’t speak to me about a problem, they felt that my life as hard at it seems meant that they didn’t wish to put upon me. But also they felt ashamed because I was doing well in my journey how could they complain? This broke my heart, I am far from ok, sometimes I lie in bed and beg my mind to leave me alone. To just for a moment stop thinking, stop torturing me with agony of what ifs or what should be. I’m not ok and maybe if I’m more honest in my struggles and vulnerabilities it will allow the others the space to be transparent with theirs.

Hey, we can not be ok together.

I do not believe we were supposed to live this life alone, but alone it will be if we don’t let those we love know our hearts.

So here’s to being truthful, to banish “I’m fine” and to reach out.

Let’s be better

Let’s do better

Let’s love better.

Drive

I never imagined I would drive, I come from a family of HGV lorry drivers and after watching them manoeuvre those gigantic machines I simply thought“not me”. The responsibility, the awareness needed all seemed out of my grasp.

It’s easy isn’t it to tell yourself that you cannot do it. That it does not happen to people like you, it’s out of your reach, beyond you.

This is what I thought as I sat in the public library one day, no matter how many notebooks I filled with my stories, poems, songs holding a book I had written in my hand was beyond me. Seeing a book I had written on the bookstore shelf well that didn’t happen to people like me.

Well it did and it has, yesterday my first children’s book was released. I’ve got to hold my dream. I’ve overcome my fear of failure, my fear of not being good enough to hold my story in my hand. To allow the dream of my heart to be realised. My hope printed from my soul.

It’s strange as today feels like a game changer, just like the day I passed my driving test (not HGV’s) and the world became larger for me. Today the world feels a little clearer, my mind a little braver and my heart a little stronger.

No more telling myself what I cannot do or what shouldn’t happen to people like me. Im going to dream and dream big and drive forward with conviction, with belief.

Belief in me.

Joining in with five minute Friday

1. Write for five minutes on the word of the week. This is meant to be a free write, which means: no editing, no over-thinking, no worrying about perfect grammar or punctuation. Just write. Write, post then link up.

We all deserve to shine

How do you stop that feeling of inadequacy forming in your throat? When others words and actions feed into the negative narrative you already have for yourself.

Why do I allow them to make me feel so low?

Why does their opinions matter so much and why oh why do I allow them to speak their lies over me?

You see I am enough,

I am more than enough.

I am a kind, caring, emotional women who has the right to be. I don’t need to fit into the boxes of others and I definitely don’t need to allow others to feel better about themselves as they hurt me.

Enough is enough.

I’m learning to have boundaries, learning to ignore (or at least pretend to) and I’m trying not to allow others to tear me down.

It’s took me a long time to like who I am. A longer time to see the value in who I am. I need to stay in this place.

I deserve to be in this place.

For a time I actually wanted to do life alone, to not have opinions around me that fed my negative narrative. Loneliness felt like a antidote to self harm. Yet I don’t have to live life alone, I can do life with others as long as I have boundaries and I make sure respect is given as it should be.

I’m not your plaything, I’m not the one you can beat down on because you are not feeling good about yourself. I am a heart, a soul that deserves to be.

So if you are like me and have allowed others to tear you down please stop. You are who you are meant to me. I mean let’s put this into perspective, every blade of grass is unique so why shouldn’t you be?

Also if you are one of those that need to beat down on others to make yourself feel better then stop. Does this behaviour actually make you feel good? Do you like who you see in the mirror?

I’ve come to the conclusion that life is hard enough without us adding pain to ourselves. Maybe we aren’t where we wish to be, we want to be healthier, we want to get a promotion, a relationship, a family whatever those are goals and goals are great, but beating ourselves up on the way to achieving them does not help, belief me I’ve learned this the hard way.

Life is going to throw curve balls, dreams are going to be lost but that’s part of the journey. Knowing who we are in ourselves is the only way we will find peace.

Validation from others is only a short term placebo.

Know your heart, know your strengths and know your beauty.

Never allow anyone to dim your sunshine.

We all deserve to shine.

I would rather lift up than tear down.

I often wonder that when God was handing out empathy he gave me a double dose, you see I often find my heart overwhelmed by things in the world. The sadness, the fear, the loneliness and so much more. There are days where I have to avoid the news because my heart cannot handle it.

For a long time I saw this emotion as weak, I saw the pain that I felt for complete strangers as stupid. But now I know different, extra dose or not I am proud of my tender heart. I admire my willingness to love hard and I cherish my desire to lift up others rather than tear them down.

You see to lift someone up isn’t easy, it would probably be easier to not care, to not bother, to not reach out a hand to pull another to their feet. Yet I don’t think we were supposed to live life easy. It’s in the hard we realise who we are, it’s through the decision moments we decide who we wish to be.

I want to be one who lifts, I want to be one who encourages and I strive to be one who loves.

This world tells us often that we have to be ruthless, that everything is about competition that we have to be the best. Walk over others to reach the top, destroy others to reach your goal. But this narrative is wrong, the joy of celebrating a victory you achieved together will always feel better than a lone success.

Joy is amplified when shared.

In a world that is so torn let’s come together to change this, instead of turning our backs lets reach out and lift up one another. Because a separated society will only breed more sadness and hate. A society that works together can and will achieve great things. Let’s just give it a try.

A trashy soap opera.

I was once told that my life was like a trashy soap opera that I was full of drama. I remember the conversation vividly, at the time my daughter’s diagnosis was official and I held the letter in my hand and on that same day I had also received a call to tell me my Nan had died. 

The literal definition of a day from hell. 

It was a defining moment for me as I realised at the that point that my pain was my own. That others could not or would not understand it.  I felt ashamed for being a burden for bringing others down and for basically existing. It was the reinforcement of what I had always believed of myself, I was broken, I was drama, I was too much. 

You see this was the narrative I had been taught, my emotions were my enemy, my empathy my foe and my heart well it was too emotional and too much. 

How I wish I knew then what I know now. How I wish I could have just put the phone down on that call or even challenged the uncaring, unthinking compassionless attitude of the caller. How could a so-called friend see a life -threatening diagnosis and the death of a grandparent as a soap opera? 

I mean how? 

I have worked hard over the last few years, I’ve had to challenge the nurtured narrative of my life that “I am too much” into a more truthful one of “I am”. 

I am a human being that deserves to exist, I am a woman who has faced heartbreak and loved hard enough to feel the pain. I am strong, I am powerful and I am a survivor. 

My life has faced tragedy, pain and loss but I am lucky that I got to experience a life of emotion. To grieve means I have loved, to have lost meant I have cared. 

Yet people are still so quick to judge others, only yesterday a conversation with a friend broke my heart. She is facing a tough time right now but feels she cannot be honest about how hard it is for fear of people thinking she cannot cope. As if feeling fear, exhaustion was a crime. I find it ironic that when someone has a physically demanding job their exhaustion is allowed, it’s ok, it’s understandable and often respected. Yet when people are emotionally weary they are judged “you need to pull it together, stop thinking about it, you need to be stronger”.  A world where those emotionally struggling are seen as weak.

We need to show compassion not judgement.

You see instead of calling my life a trashy soap opera my friend should have been a place where I could admit how my heart ached for my Nan and how the fear of the future for Livvy my daughter was often overwhelming and she should have told me how proud she was that I still showed up. That in the midst of this emotional tornado I was still fighting to give my girls the best life I could.

She should have loved me through it. 

Loved me in it and through it. 

You see, the British stiff upper lip crap needs to end. People need to feel free to say that today is hard. People need to support others where they are rather than where they feel they should be. A end needs a beginning and a middle before it is reached. 

Emotions are messy, they are often uncomfortable and can be hard work, but they are what makes us human. We should never have to hide our hearts. What I know now is that I need to surround myself with people who love me for my heart.

So if like me you often find yourself apologing for your heart stop, find your people, find those that love you as you are, find your tribe. It’s not about  changing to fit in, you cannot live a lie. You don’t need to be anyone but you. 

Be you, be proud, cry, scream and love hard, because you are beautifully and wonderfully made. 

Dancing in the colours of my mind.

Have you ever closed your eyes tight so you can watch the colours as they dance across your minds eye? As a child I used to love doing this, escape into a world of colour.

My imagination was my happy place, somewhere I could be part of a world I created, a world that made sense because this planet we call earth never really felt like home.

Once I remember reading a book about cuckoo birds and was sure like their eggs I have been born into the wrong nest.

It’s a strange feeling seeing yourself in the features of those around you but not feeling connected in your heart.

Was I strange, am I strange, I guess both statements are open to arguement.

What I’ve realised as a mother is that being related does not mean that you are alike. I have birthed four amazing beautiful girls and whilst values and love for each other is similar their personalities could be no further from different, one outgoing, another reserved, one loves to learn, another loves to do. Each so creative and beautifully unique in these own special way. I celebrate this about them, so what cannot I not celebrate this about myself?

For a long time I felt that I could only be true in my imagination, that here in the real world I would have to play a part, a character created for me not by me.

Yet as I’ve grown and got older I’m finally beginning to spend time allowing the me from my imagination enter the me from the real world.

I’ve realised that to live truthfully you have to be true to yourself. You are not being fair to others if you pretend to be what you think they wish you to be.

Falseness brings hollowness.

This time in isolation right now has been hard for me as I’m sure it has for many others. Not being able to hide means that your heart has to shine out.

I’m learning so much about myself and about others. Those that truly value your connection and those that dont. Do I fit a need or a want? Was I a use or a heart to hold?.

This isolation time has illuminated so many things I was trying to hide from. But as much as I love my imagination, hiding from the pain in the multitude of dancing colours is still hiding.

Like so many others I am desperate for the lockdown to come to an end. For the world to feel safe again. Yet I dont want the world, my world to return to normal. I want to understand more about myself, to truly know my own heart. I want celebrate the true connections that have held and to truly allow myself to live my imagination in my real life, a life full of beautiful dancing colour.

Seasons change.

“there is a time for everything

 and a season for every activity under the heavens”

Ecclesiastes 3:1 New International Version (NIV)

I have walked many seasons in my life, and I know one of the longest and hardest of these has been my season of grief.

From the time my daughter Livvy was diagnosed I have grieved for what should have been, the life she should have lived or it in reality the life I had expected, planned, wanted her to live. 

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Then when we lost her 11 years ago, I grieved for her physically, grieved for her missing, her smile, her touch and the blessing of her spirit.

My grief felt like darkness.  

My whole spirit crushed by the pain of missing. 

I didn’t understand the why and I was often angry screaming at the ‘why her.’

This was my season of darkness and no matter how hard I tried to pretend I wasn’t sure I would live a life with light anymore.

Yet Jesus knew. 

My dear friend sent me a link to Christian singer songwriter called Steven Curtis Chapman.  Steven and his wife lost their daughter the same year I lost Livvy. Through his grief he wrote and produced an album called Beauty will rise. This cd, these songs, the words broke through my darkness.  In the midst of my pain I could not see God in my Bible, the words lost as my tears blinded me from his love. Yet in these songs, in the lyrics, hope started to grow once again, and the promise that I could hear in the melody slowly healed my heart. 

One of the songs is called ‘Spring is coming ‘and this week as we have faced 11 years without our beautiful girl, I have held on tight to this. Not because I am waiting on the Spring though this cold weather is already getting to me, because I know the blessing of the new.  I have felt the new life burst inside of me. I give thanks and praise to the changing seasons and the love, the hope and the promise each one brings. 

So today I am sharing this with you, sharing my heart and my journey, because God has asked me to share my story. He wants all to know that he is the light in the darkness. 

“I am the light of the world. Whoever follows me will never walk in darkness, but will have the light of life.”

John 8:12 New International Version (NIV)

Jesus was and is my light. 

So, if any of you are now struggling in the darkness and if you are feeling the crushing weight of fear, doubt or anger, hold on to the fact that this time is a season and that seasons change. Life is a journey often full of pain and loss believe me when I say I know this but whatever you are facing, know that you are not alone, that Jesus walks beside you. 

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If you had asked me 11 years ago if I would know joy again, I would have said no easily, my heart was broken. I still miss Livvy so desperately and often still fall under the weight of grief but now my heart knows the promise, the promise that one day I will be reunited with her. Yet in this life whilst I walk it without her physically right now, I know that Jesus has great plans for me and joy it does come in the morning, not promising what morning but it does come. 

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So, I just want to remind you that whatever you are facing you are not alone. That you can do this and even in the crushing darkness there will be and always will be a light, the light of Jesus.