We love our nurses

Can I tell you something, it was something I knew before I had ever heard of Covid 19. It was something I was sure of before the nightly clapping, it was something I believed in before the rainbows flooded the country.

Nurses are incredible.

So many times I have cried on the shoulders of nurses.

So many times have my children been hugged and comforted by nurses.

Too many times has it been a nurse that translated between me and a Doctor.

Forever and some has a nurse supported me on my journey.

I don’t understand the government right now, the mighty warriors who held our frontline are being mocked and patronised. “It’s all we can give” being lost in falsehood contracts and unusable PPE.

Bonus’s for individuals who profiteered through a crisis. Yet a poor meal deal offer for those who gave it all.

Why we were being asked to stay home they were being asked to do more. Covered shifts, move wards, exhaustion, fear overcome by duty.

Yet even before the wards filled with the virus nurses stood by our sides. Yet our chosen government turns their backs once more.

Strikes, industrial action more and more damage to an already exhausted gift. NHS in crisis can only fall at the entrance of one door.

Please Prime minister you talk about the saviours as you laugh behind their backs. You want the country back to normal yet humiliate the builders.

We will not sacrifice the NHS at the alter of Capitalism. We will fight tooth and nail.

The fight that no one has the energy for yet one we cannot afford to lose. A country without the NHS is a country no one wants part of. A service without nurses cannot continue.

Mr Prime Minister, go back to the ward you were on. The ICU unit that healed you, go back now and stand before them with your soggy sandwich, packet of crisps and fizzy drink and you say thank you, thank you for my life and then hand them your measly 1% and ask yourself truly, is this enough.

It isn’t.

It’s your fault

Having a child with disabilities means I often find myself meeting with professionals who are supposed to be in place to support and guide me and make sure my child’s reaches his full potential. I use the world supposed because sometimes and some would say often this doesn’t happen.

I have met some amazing people who are incredible at their jobs and I have met some doozies who seriously need to either consider a career change or at least attend a training course on compassion, respect and understanding.

Yet thankfully I have never come across one like the one my friend has met this week. My dear friend is at breaking point she adores and loves her child with every breathe she takes but after literally sleeping for less than three hours on a good night for the last how many years she is broken. After asking again for the numerous time for a little support and respite she actually told a professional that she is close to breaking, she is physically and emotionally on her knees. To which the so called professional replied “well how is that going to benefit your child, you have a responsibility to keep yourself well for your child”. What the **** seriously I’m not sure how my friend stayed calm in this situation without demanding a manager or someone at a higher level but she did (I actually think she is just too tired to fight anymore). Yet how, just how can a someone say this, it’s not as if my friend wouldn’t love a good eight hours sleep each night, the chance to spoil herself and have a haircut, a night out on the town with the girls. She would desperately love this but as a sole carer, her child has and and always will be her priority. How is her exhaustion her fault?

I’m sorry but do people really believe this ? That parents of children with disabilities just cannot be bothered to take care for themselves.

Let me give you a little breakdown of my day,

It’s starts pretty much where yesterday finishes, I have medication to give at 12am, 6am, 8am, 12pm and 6pm. I also have an overnight feed to prepare from 12am till 7am, also another 8 Bolus feeds to give throughout the day.

I have a minimum of 10 nappy changes each day with all nappies weighed and recorded.

My child sleeps maybe 3 hours max at a time needing comfort, moving and generally loving throughout each night and that’s on a normal night. This can double or treble if unwell in any way.

To leave the house, besides feeding, changing and lifting my child into his wheelchair I also have to pack feeds, meds, and emergency protocols and emergency meds. I cannot ever just wing it and just grab my handbag and leave. His life depends on me carrying the medication he may need.

Let’s also realise that normal chores are often doubled or tripled, washing for example does not consist of the normal one outfit a day but the numerous we need from unexpected changes, sheets bedding etc etc.

Add to this caring for my child’s needs, dressing him, bathing him, moving him, lifting him and of course playing, amusing him and loving him.

Oh I almost forget I’m also my child’s personal assistant arranging, rearranging and chasing his numerous medical appointments, the EHCP paperwork, ordering his medications, his equipment and so on. I’m also his advocate fighting for the things that he needs to live with a quality of life he deserves, his voice and his fiercest defender.

So please tell me where or when I am supposed to take care of myself? And guess what I have a supportive husband, great older children and actually a care package that is working for me. For a professional to suggest my sole carer, 4 hours each month respite friend literally is bringing her ill health on herself makes me see red.

Times are hard, right now we have a government that believes everyone can make do a little more, well everybody besides the top 1% of course. My friend already has to make choices between sleeping and eating but hey I guess she can make do a little more. I mean who needs food? She loves and adores her child and so wants the best for him but all she was asking for was a little compassion and support, is that too much to ask?

If she does break and her child goes into a residential facility where he will need 2 carers to support him at all times he certainly will be costing this government so much more.

I actually didn’t know what to say to my friend when she told me what had been said, part of me wanted to go in kicking and screaming and demanding an apology for her. Yet I’m realising the problem is a lot wider.

When you have train companies believe it’s ok not to make trains accessible for disabled people, when you have superstores using disabled children for advertising whilst depriving them of the basic facilities to have their care needs met, I realise this world needs to change.

When you live in county where almost three quarters (72%) of carers have said they had suffered mental ill health as a result of caring, while well over half (61%) said their physical health had worsened.

You know things have to change.

I welcome the news released yesterday that a joint report by two Committees of cross party MPs, the Housing, Communities and Local Government and the Health and Social Care Committee, calls for new contributions from individuals and employers into a dedicated fund to be ringfenced to help pay for the growing demand for social care in the future. Highlighting the immense strain that the current system is under, including families providing unpaid care, the MPs have proposed a series of measures including a new “Social Care Premium”.

But there is a long way to go..

Figures released by Carers UK show that

1 in 8 adults (around 6.5 million people) are carers

By 2037, it’s anticipated that the number of carers will increase to 9 million.

Carers save the economy £132 billion per year, an average of £19,336 per carer

Over 3 million people juggle care with work, however the significant demands of caring mean that 1 in 5 carers are forced to give up work altogether.

Carer’s Allowance is the main carer’s benefit and is £64.60 for a minimum of 35 hours, equivalent to £1.85 per hour – the lowest benefit of its kind.

People providing high levels of care are twice as likely to be permanently sick or disabled

72% of carers responding to Carers UK’s State of Caring Survey said they had suffered mental ill health as a result of caring.

61% said they had suffered physical ill health as a result of caring.

Over 1.3 million people provide over 50 hours of care per week.

Again I will stress there is a long way to go.

Yet how hard or how little would be needed for those professionals in the lives of carers to actually think before they speak. To actually show compassion without passing judgement.

My dear friend hasn’t the energy to ask for an apology and right now is literally holding it together in her words “with Gods grace and the love of my boy”. But how many more are out there struggling feeling alone and broken?

I know how hard it gets and as I have said I am one of the lucky ones.

All I hope is that change will come but until then if you are struggling, if you are feeling alone please get it touch because none of us can do this alone but together we can and will make it.

To important for bias.

Have you ever wondered how you view life?

How we each have our own unique way we understand, commute things.

How our own life’s experiences relate to our understanding.

I was once told by a detective that there is nothing more confusing than eye witnesses. How five people could watch the same event unfold yet describe it back in extremely different ways.  How bias and expectation could change how they saw things.

I’m seeing this greatly today in the current political sphere especially around the subject of the NHS.

How people who have never had to use the Health service or only once in a blue moon are falling for the Conservative facade of a failing system.

I’m so tired of reading that more money won’t save a failing system or the biggest myth that doctors are asking for unfair contracts.

That privatisation is the only way to save our healthcare.

Bullshit and lies.

On July 5th 1948  Aneurin Bevan launched the first NHS hospital, his philosophy was simple. A service paid for by the people through taxation but all healthcare given freely at the point of delivery. The cost through taxation was to be fair as people would pay according to their means.

It was and still is one of the greatest achievements of any government here in the U.K. The NHS saves lives every single minute of every day. The Doctors and nurses work tirelessly and are often under appreciated for the wellbeing of everyone.

When a patient turns up on a surgeons table, he doesn’t stop to ask before he makes his incision to check the man can afford his fee, the surgery costs. No he works hard to save or to give a better quality of life.

The midwife preparing to deliver a baby doesn’t check the financial wellbeing of the mother. No she is too busy checking the physical wellbeing of the child and the mother.

A life is a life, one is not valued above the other and that’s the way healthcare should be and should stay. One for all, free at the point of delivery.

Let me tell you about my experience of the NHS. I was actually one of those people that moaned about waiting lists, moaned about crowded GP Surgeries. I was healthy, my children were healthy it was easy to moan from position of healthy privilege.  Then suddenly my world changed. My beautiful daughter became a regular visitor on the children’s ward. Nurses started to become my friends and Doctors became literally her life savers.

The NHS started to extend into my home, prescriptions, medical equipment, Physio things needed to help keep my daughter well, help keep my daughter alive.

Not once before an emergency seizure medication was given was I asked for my bank details. Not once did they turn around and say “I’m sorry you cannot afford this”.

Because guess what, I wouldn’t have been able to.

Already this year Doctors and nurses have saved the life of my son. They worked through the night, standing by his side. Oxygen, high dependency machines.  The NHS continues to work to keep him well, only today did our wonderful community nurse come to take bloods and swaps.

Our NHS is something that here in the U.K. we should be extremely proud of. Privatisation doesn’t work, I only have to look to other counties for evidence of this. Insurance companies refusing to pay for treatment, disabled children going without equipment, because rules have changed and what was once entitled is no longer considered necessary.

Privatisation works for those that can afford it. It’s as simple as that.

Our NHS is not dying it is slowly being strangled by those that wish to exploit the system for their own personal gain.

Those that do not care about people just pound signs.

I’m tired of seeing photographs and reading stories of people being left in corridors in hospitals waiting for treatment.

Does this happen?

You Bet.

But it is not because a system is failing but because a government will not fairly fund the system. We are not running out of beds because they are all taken up by asylum seekers, there are beds. Wards and wards are being left empty simply because the government will not fund the staff needed to keep them open.

This is the truth, the government are risking lives for no other reason than to force a public service into privatisation. So that the services can be slowly deemed as failing and the only option left is for the white knight of a private company to come in an save it. A wolf in sheep’s clothing.  No private company can offer a service without a profit its as simple as that and profit always has and always will come at someone’s cost.

Our cost, the millions of people who work day after day to make ends meet. Who though no fault of their own find themselves in need of treatment.

Our NHS has probably been there for most of our lifetimes. It was there when we were born, when our children were born. When we have needed it.

Now it needs us.

It needs us to drop our biases and work together to save it.

It needs all of us to realise that one day we may need to use the NHS to save our lives and to fight now to make sure when that day arrives it is still there to do so.

Doctors, nurses, medical staff all need to know that we stand beside them. That we are not falling for the right wing media hype that the crisis is their fault, mismanagement, lack of compassion, egoistic junior doctors.

We need to stand together to fight against the lies that the NHS is dying and fight to save it and restore it.

 

10 Ways To Support Your NHS from the NHS Support Federation 

1. Sign the NHS supporters’ pledge
If you haven’t already done so, please sign our petition – and encourage your friends and family to as well.

 

2. Lobby your parliamentary candidates
Contact your MP and other parliamentary candidates. Give them key information and ask them what they are doing about it. MPs use the content of their mailbag as an indicator of what the public care about. Sending them a letter takes a few minutes using our platform, or you could make an appointment to see them. Alternatively use our lobbying tool.

 

3. Follow us on Twitter and help spread the word
Retweet links to reports and infographics. This is a good way of highlighting key facts on funding or privatisation and getting others involved in doing the same. start a ripple and watch it spread. Join in with mass tweets where NHS supporters collaborate to promote a single message.

 

4. Join a local campaign group
See if there is a local NHS campaign group in your area, to join and help protect local NHS services.

 

5. Help as volunteer researcher
You may have just the skills we need to gather and analyse information. Contact us if you have some time to help us with internet or desk research, james@nhscampaign.org
6. Distribute campaign materials in your neighbourhood
Print off a supply of campaign flyers and post them around your neighbourhood. If you feel like talking to people, then ring or knock before you leave the flyer. Some NHS supporters set up stalls in their local shopping centre or railway station to talk to residents and collect support. Try and encourage people to visit this website, find out more and to sign the NHS pledge.
7. Distribute our campaign materials at work
Email links to the facts and NHS news that stand out the most to your friends and wider networks, it will help to get their attention focussed on what’s happening and why. In a more traditional way, feel free to print off pages from our website to copy and circulate them.
8. Write your local paper or take part in a radio phone-in
The letters page is one of the best read parts of the paper so can help to let local people know what is happening to their NHS. Use the briefings and key statistics to help you. Don’t just shout at the radio, why not phone in them and give them some of the facts.
9. Ask your trade union branch to affiliate
If you’re a member of a trade union, encourage your local branch to affiliate to our campaign.
10. Donate to our campaign
We rely on the help and generosity of NHS supporters to run campaigns and organise research. We are an evidence based campaign, so your donation will help to establish what’s happening and to get it into the media and then to the public.
Setting up a direct debit is particularly helpful as this can help us to plan, research, and coordinate our campaigns more effectively in the longer term. However, one-off donations are also gratefully received and used  to protect the core principles of the NHS.

We cannot stay silent anymore, we need to be asking questions of this government, demanding that they protect our NHS. If we don’t speak up now it will NOT be there when we need it.

 

 

 

Radical and Tea

When I come across a site that offers some amazing things I cannot wait to share it with you all. So let me introduce you to The Radical Tea Company. 

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Anyone who knows me, knows how passionate I am about protecting the vulnerable, by being a member of the Labour party I hope I stand up for all not just elite and wealthy. So when I found The Radical Tea Towel Company I was beyong excited. Their amazing products allow me to fight discrimedation and drink tea, two of my favourite things.

 

Beyond really amazing tea towels the company offers more. I have already purchased myself a mug which I love and some of their wonderful cards.

 

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You can advocate whilst you drink or send a card to inspire someone to keep fighting the good fight. They have a great selection of  tea towels, mugs, gifts and loads more. I have my eye on this beautiful William Morris apron, though I am also in love this fun Left wing one. 

 

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I am seriously spolit for choice.

 

Take  a visit over to The Radical Tea Towel Company

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Let’s change the word together.

 

 

 

If my words were never to be seen. 

“Write as of no one would ever see your words”. 

I saw this statement on Twitter yesterday and it really made me stop and think, what would I write if my words would never been seen?

Would I tell you that I am pissed off at humanity, that the images I see and the news I read from around the world actually makes me sick at times to be part of the human race. 

The disgusting way we are treating the refugees from Syria. Destroying make shift homes, attacking those that already have nothing. Treating them as the enemy as they flee from all they know all they love. 

The current state of the political system the way it’s leaving people soul destroyed. Budgets being slashed for the things that really matter, social care disappearing, vulnerable people being left in crisis. 

The NHS slowly being sold off to rich selfish corporations whose only compassion is for the money it can make. 

People coming second to financial gain.

Would I tell you that I truly believe the world has changed. Gone is the love each other sentiment of this planet to love myself. 

The art of conversation is lost, gone are the days of real words and sentiment now we are a society of text talk or emojis.

If my words were not to be seen by anyone I would tell you that I worry. I truly worry for society. That I wish people would wake up and realise that we aren’t meant to walk through this life on our own. That our actual DNA needs to us to be sociable and to build relationships. 

We need to think outside ourselves. That the greatest joy can be found in giving not in taking.

If my words were never to be seen maybe I would admit that I’m tired of selfishness. Of seeing some that have so much and others that have nothing.

I’m angry at the rise of homelessness, emotionally corrupt landlords raising rents that only the elite can afford. Forcing families who have lived in an area for generations to have to move away from all they know, all they love. We are building lines between those that have and those that don’t. 

If my words were never to be seen I would admit that I too have to change. 

That I know I can be selfish at times. That my expectations of others can sometimes be to high. That I need to learn to let things go. 

If my words were never to be seen I would admit that I hurt. 

That sometimes I actually feel as if my heart may physically break. That I’m tired of pretending, that I crave to be true. That sometimes I don’t want to be the bigger person or rise above it. I want to call some out on their behaviour. Tell them it’s not ok. 

If my words were not to be seen. 

Well then they would be just words. A formation of letters that hold no power.

Words are to be seen.

To be shared 

To be experienced.

So I’m writing today without fear, writing with my heart wide open. 

For I want my words to be seen.

I want my words to matter,

But most of all I want my words to be my truth. 

Not staying down

So we now have a Conservative government and to be honest I cannot even pretend to be anything but devastated about it all.

I have real fear for the future of those with disabilities. Those who struggle to make ends meet. Those who have nowhere to live and my list goes on and on. 

I am actually feeling truly despondent. 

Yet after listening to Ed Miliband’s leaving speech I was reminded of something.

“Finally, I want to say this. The course of progress and social justice is never simple or straightforward. Change happens because people don’t give up, they don’t take no for an answer, they keep demanding change.
This is my faith: where we see injustice, we must tackle it. ”
Ed Miliband

People can bring change and we can fight injustice. Maybe Russell Brand is right it’s time for a revolution.

A time for compassion.

A time for community 

A time for change.

A time for us all to find our voices and start shouting louder.

A time to fight for what we believe in.

Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it’s the only thing that ever has.
Margaret Mead

I have to have hope and I for one aren’t staying down

A brighter future 

Unless you have been in hiding somewhere I am sure you are aware it’s Election Day here in the UK. A day where we take to the polling stations and vote for the party we wish to rule our country.

From the moment I was 18 I have voted. In fact it’s always been important to me and I’ve worked my way through more party manifestos that I care to admit. Because it matters , it matters who I vote for and it matters what they stand for.

I actually started this election countdown with the feeling that I would have to pick the best from a bad bunch. A party who would do the least damage to society, but thankfully my research has let me to believe that there is hope.

My hope isn’t actually coming from the politians themselves but from the new vibration of the people. People who for too long have stayed quiet while they were getting shafted by the elite. People ready to fight for their homes, their services, their lives.

I hope that this continues past the election regardless of the winning party. The political parties are supposed to be there for the people lets keep them accountable.

 I want a fairer society where children have hope in their future.

I want a party who plans not fire fights.

I want investment in children services to be a priority. To support and guide children is a lot easier and more successful than building more prisons to house those we let down.

Higher education not at such a high cost.

There needs to be more money given to the disability sector. From the need of more specialist services to respite there needs to be massive changes. Support and finance given towards supporting independence. Carers being recognised for all they do.  To be respected and supported.  The last government have done serious damage to this community and whoever wins today needs to be quick with changes.

I want our emergency forces to be valued. Our armed services equipped. 

Our NHS to become something we can be proud of again. More nurses, less waiting times and quicker referrals.

I want this and so more much.

I want voices to be heard from all not just the elite. Decisions to be made for the majority not the 1%.

I have no problem with the rich getting richer just not to the cost of the rest of society.

Reforms in the banking system and the end of non Dom are a must.

I want a future for all. 

Affordable houses, better schools, more support for fighting addiction and definitely more investment in the looked after system.

I want people to feel a pride in Britain again. To respect the values that we once held dear. 

Communities to again be the normal. For us all to know our neighbours. To banish the lie that we don’t need each other. 

I know I ask a lot  and yes I accept that whichever party gets in today will fall short. But I do have hope (well unless the conservatives stay in power). 

So people use your vote today. If we want to see change we have to demand it.  

Still remember our part doesn’t end today let’s continue to put pressure on. Let’s make sure the new government remembers who it represents. 

Let’s give our country hope. 

  

Speak Up – A stitch in time

For the last 14  years I have been working with professionals within the social care field where there is a majority opinion that funding given in early support services would make savings later on and make a more dramatic difference to children’s lives.

Investment in the health of pregnant women leads to healthy children.

Support for young, inexperienced mother’s lead towards more educated, healthy happy children.

Guidance and support in youth services leads to less in the juvenile correction system and so on.

Yet for so long services seem to be funded in a catch up manner, fighting the fires when the fire is at full blaze.

So this is why I am getting behind a campaign being run by Action for Children, Barnardo’s, The Children’s Society, and NSPCC called “A Stitch in time”

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We say it’s time for change.

Responsible government must invest in services and support that prevent problems before they start — to improve the lives of children and families and save money for taxpayers in the long run. That is why we are calling for all political parties to make a commitment to shift the emphasis of public services to early support.

We want the next Government to focus more on early support
 to help children, young people and their families.

1.

More stability into children and family
 services – five year spending plans

Making five year funding commitments — from one election to the next — would allow the Government, local councils, and other service providers to make longer-term plans. Most importantly, children could stick with the same support staff as they grow old.

2.

Help your local £ work – promote
 Community Budgets

Community Budgets allow providers of services to pool their budgets. This reduces waste and makes it easier to work together
 to help children. It’s a relatively new way of working, so the Government needs to support its development and promotion.

3.

Show us what’s
 happening – more accountability

With spending moved towards early support, we would like to see annual progress reports. Parliament should be involved in scrutiny through the Public Accounts Committee.

4.

Acting early to avoid crisis – shift public money towards early intervention

There is so much evidence that acting early avoids expensive crises that it only
makes sense to invest a bigger slice of our public money.

 

Our support services are struggling and many are reaching breaking point, people are not getting enough support,  getting support to late or simply getting none.

Investment is needed in early support and intervention and it is needed now.

A stitch in time is asking you to Take action Now. 

Visit the website and help protect children from crisis.

 

 

speak up

 

Together we can raise our voices louder.

So join me each week writing about what has touched you enough to speak out about.

Share news, campaigns, petitions and so much more.

As a community we can support and encourage one another.

After you have linked up visit at least one other blog of those who have linked up.

“Throughout history, it has been the inaction of those who could have acted; the indifference of those who should have known better; the silence of the voice of justice when it mattered most; that has made it possible for evil to triumph. “

Haile Selassie

Lets do this ……..

 

 

Visiting Number 10

You would never guess where I was only last night, 10 Downing Street,yes that’s right the home of our prime minster.

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I was invited to an event being held by the charity Net buddy, a online resource for parents, carers and professionals dealing with people with learning disabilities, offering advice, support and guidance.

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I’m not sure why I got the invite but hey I wasn’t going to say no, was I?

I had a truly wonderful evening, meeting the founders of Net buddy, Deborah Gundle and Linda Goldberg two inspirational and very determined woman.

But the highlight of my night was my when i got to chat briefly with Samantha Cameron and was able to share Livvy with her.

Downing Street was an amazing experience and one I can now tick off my “to do list”. Getting to walk through those gates was simply WOW.

The interior of number 10 was truly beautiful, I really wanted to just stand and admire the artwork and architecture. But for some strange reason you aren’t allowed to go a wandering. Such a shame, maybe next time.

I am a great admirer of our government and the way it works so visiting such an astute place was a fascinating experience for me.

All in all it was a incredible and exhausting experience and one which I will cherish for a long time.

Though I promise if I ever get invited again I will wear flat shoes, my feet are still aching today.

Thank you Deborah and Linda at Net Buddy for my invite and keep up the amazing work you are doing.