Please tear down the curtain.

Give yourself time, be kind to yourself, the pain will ease. I know people mean well and I love them for it, but in all honesty I don’t want time, I don’t want to be kind to myself and the pain, well shouldn’t I always feel it? They say that grief is the love we cannot give so this agony feels right,

As it should be.

I know I’m not helping myself but right now I don’t want to. I’m missing Daniel with such an intensity that I can barely breathe. Everything I see, every room I walk in his absence is suffocating. Everything reminds me of him and how my heart is forever broken missing him.

I just want to scream at God to bring my boy back.

Please.

If you have a faith the pain of losing one you love often lands you in two camps of thought. The first is closer to God, you feel him closer, you find your comfort in his promises. You know that Jesus catches ever tear you cry. You know with a certainty that you will see you loved ones again.

Or the second camp, you are angry, so angry that you cannot believe God had taken the one you love. You tell yourself you cannot believe in a God who does this. One who is all powerful but didn’t save the one you hold in your heart. Faith becomes lost in the pain.

For me I think I’m actually going to make a camp number 3. One where I love God and I know Daniel is with him but one where I really am angry that he didn’t save my son. How or why is my beautiful boy gone from me.

I was thinking as I was writing this that often people speak of a curtain between us. That to trust that Daniel is still close to me and it’s only a curtain that separates the living from those gone before us. Yet I often thing of the scripture when it tells what happened when Jesus was crucified that the curtain was torn in the temple. I want my curtain to be torn. I want Daniel to be here not behind a curtain or in another room, I want him here in my arms.

I want that curtain torn down.

I want to kiss the top of his sweet head and I want to feel his heartbeat next to mine. I want to hold him in my arms once more. I want it as it should be.

I want

I want

I want.

Please

“At that moment the curtain of the temple was torn in two from top to bottom. The earth shook, the rocks split. “

Matthew 27:51

In the brokenness

I’ve never been one to follow the calendar. I often don’t know what day of the week it is let alone the date, this has especially been the case in the last two years due to shielding. I mean who cares what the date is, we aren’t going anywhere. Yet since Daniels death I have found myself coming slightly obsessed.

When April turned to May my heart was aching, a new month that Daniel won’t be part of and today we begin another month that won’t hold him in it, it’s so very hard and feels so wrong.

How do I do this life without my beautiful boy? I really feel the need for direction. Nothing makes sense , the things I loved are now too different without my son. Alan suggested I join him in keeping the house tidy but even thinking about it makes me tired. I mean we are just cleaning up our own things when I’m so used to changing beds because Daniel had peed on the sheets, often literally after I had just changed his pad. That boy loved a clean nappy. I should be cleaning up milk when I forgotten to clamp the tube. Weighing pads, chasing prescriptions and so much more. What i am not doing makes what I should be doing feel so out of reach.

I know it’s going to take time and it should, shouldn’t it. You don’t move on from losing your heart in a day, week, lifetime. I’m just so lost it’s crazy, I think that may be my forever statement. “I’m lost.” Then I think of one of Daniels favourite hymns “ i was lost but now I am found” maybe I will be found or find myself again.

Who knows?

Alan and I are struggling so scared about the future. It’s hard trying to make a life you so didn’t want. Everything is different, everything is hard, everything is missing Daniel. People keep telling us of the holidays we can now take, the places we can now visit, the freedom we now have. I know they mean well but this so called freedom came a high cost. Plus I never felt so free when I got to love on Daniel.

I remember so vividly when we lost our beautiful Livvy my anger, I was so angry that the world continued to turn without her in it. I feel that same anger with Daniel but with an extra element of bitterness, we lost him to what we tried so hard to protect him from. His life was stole by a virus the world wants to forget. He is just one in million statistics that we just have to accept. It’s shocking, it’s cruel and it’s so very wrong.

I’m never going to be the same person again and I don’t think Alan will either. Sometimes the spotlight is too powerful to not see the truth. I don’t want to stay bitter but the brokenness of my heart allows it to creep in.

My wonderful friend reminded me at Daniels celebration of the Japanese art of embracing brokenness, Kintsugi. Kintsugi teaches you that your broken places make you stronger and better than ever before. When you think you are broken, you can pick up the pieces, put them back together, and learn to embrace the cracks. Kintsugi teaches you that your broken places make you stronger and better than ever before. She reminded me that I had once before filled my brokenness with gold and that I will do again.

I’m beginning to think I may end up with a bowl full more of gold than china but that’s ok every crack, every bit of brokenness was made because I was blessed enough to have loved and to be loved.

To be so very loved.

Dear Daniel

I did it again, I pressed my phone to call your Daddy to ask him if he had put you on your milk yet. Why is my body still waking me a month after we have lost you? Why is my normal no longer my own?

Oh Daniel there are not enough words in the languages of the world to explain how much I’m missing you. Even now as I lie here unable to sleep I know I haven’t accepted the fact that you have gone. I’m a mess, a complete utter mess and for once in my life I do not care. My mind isn’t full of wondering, afraid if others are judging me in my sorrow, I don’t give a monkeys it hurts, it’s agony.

The house still echoes of you, our home, your home, your scent still lingers on the air. I’m still using your shampoo as a body wash so I can smell your sweet scent of strawberries all around me. It’s running out, would it be weird to buy it again? Maybe I will search for an actual strawberry scented body wash. Maybe that’s a compromise. How I hate that word right now “compromise” it feels that’s all I am having to do. Grieve whilst trying to move forward. Rest whilst job hunting, always having to give a little when I really haven’t got a lot left anymore.

I don’t have you anymore.

Oh Danny, I know they will call me soon to collect your equipment and whilst I know you are free from the disabilities that made you need them, letting them go is part of an acceptance I have yet to reach. I’m scared of the emptiness their return will leave behind. I know I have to do it at some point, there is so much to sort out. Your wardrobe is full of new summer clothes you have yet to wear. No sorry clothes you will never wear. This sucks!

Your toy box is still in the living room, your book case full to the brim. Talking of books the new book written by Jacqueline Wilson came today, it shocked my heart. I had forgotten that we had put it on pre-order, “ A new adventure of the Faraway tree” do you think Moonface will still be in it ,maybe Silky too. We loved reading the original written by Enid Blyton together, I’m sure we would have loved this one too. Maybe when I get you home I will read to you. Is that a strange thing to do? Maybe I will just curl up under your blanket with Edgar and read it. Yes I’m going to cry, come on everything is making me cry. Do you know how hard losing you has been?

I guess I need to try and sleep, the irony is that now I have no one waking me at every two hours but I’m sleeping less than ever. I am hiding in my bedroom more than I should be, I’m not sleeping I’m just pretending you are downstairs with your Daddy. I know it’s not helping but let’s be honest nothing does.

Hey beautiful boy, I’m trying I promise I am. Giving up would be easy but I know you and Livvy didn’t teach me that way. Your both fought to live; I promise I will try to honour that. You guys need to help though, sprinkle me with some heart healing dust from heaven, how I wish that was a real thing. I remind myself that I “grieve with Hope” well I’m working on the Hope part, but I’ve got the grieving down perfect.

Oh my gorgeous handsome son, missing you is so so hard. Just to hold your hand in mine once more, yet I know once more is never enough, would never be enough.

So it’s been a month my dear boy, one whole month since your took your last breathe this side of heaven as you lay in my arms. As I held your body close to mine your spirit ran to Jesus.

Until my time comes, until I can run to you and Livvy.

I will miss you

Forever heartbroken

Your Mommy

Xxxx

My beautiful boy xx

Mother’s Day love

Mother’s Day, a day where we come together to celebrate all things that are Mom in whatever form that comes, stepmoms, adopted moms, grandparents being mom and so many more.

Being a mom is one of the hardest jobs in the world. The exhaustion of pregnancy, the labour of delivery, feeding, sleepless nights and so much more but yet it’s often the most rewarding role we will ever get to hold.

It’s tough and this last year has been a real struggle , ‘wow’ is pretty much all I can say about the last 12 months. From home schooling to the deep pit of fear that has been in your stomach since the words Covid 19 were first spoken, it’s been a year.

Still if I wish to challenge all moms a little now in fact probably all parents regardless of gender. What do you think is the one thing that is the hardest to cope with when being a parent?

Exhaustion, worry, finances,

Shall I share what I have placed on my heart this week. What God has wanted me to share with you all.

The hardest thing about being a parent

Expectations

These pesky little things that penetrate our minds and hearts.

I should be

I could be

If only

All turn into

I failed

I’m useless

I’m letting them down.

Now I’m coming to you as a mom of a five so a little experience here and also as professional of therapeutic childcare and I just want to state something here and I really want you to hear me.

You are enough

You are enough.

Our children enter this world with only a few needs, to be fed, to be warm and to be loved. Speaking confidently right now I am sure that each of your children are having those needs met. They are either grown and off living lives that you have encouraged and nurtured. They also could be there in your arms snuggling tight or even kicking out in your precious womb. They could be causing complete mayhem running around the house but all done in the knowledge that ‘they are loved’.

You are enough.

Yet we only have to look back the last 12 months and the changes this virus has brought into our lives. Homeschooling, isolation, exhaustion, fear. How many of use have felt lost, that they are failing?

My hands are right up in the air, me me.

I have watched social media posts of moms with beautiful converted classrooms with their children willingly working away. Houses spotless, make up perfect and I’ve literally cried. I have cried as Daniels homeschooling paperwork fell off the printer for the 15th time, cried as he completely ignored me as I tried to encourage him to work, sobbed at the state of my house and as for being perfectly made up, well I’ve had a shower and I’m saying Amen to that.

You see I couldn’t reach the expectations I had put upon myself and that’s ok. Because Covid 19 or not, being a mom is hard.

We mess up, we lose our temper and we suck at patience some days. Because motherhood didn’t come with super hero powers just the responsibility.

Anyway where am I going with this, well I’m leading to something I have personally took a long time to learn.

You don’t have to do this life alone.

As friends and family we are there to walk alongside one another. Reach out to friends, not only those at your stage at life. We have a wide breathe of generational wisdom to tap into.

But most importantly

Reach up, reach out to Jesus and ask him to walk alongside you. Ask for wisdom, hope and a big one for me, for patience.

Ask him to free you from the lies of the enemy that you are not enough. Free you from the untruth binding of expectations. To be beside you as you raise the next generation and to guide you as you walk this pathway of parenthood.

I ask you to look now at your child or if they are not with you bring them into your mind. As your heart swells of the love you feel for them as the love you have warms you to your very core, I want you remember.

I want you to remember

“We love because he first loved us.”
1 John 4:19

He loved us first,

He loved us first.

Remember that Jesus loves us as we love our children, that warmth you feel for your children he feels for you. He loves you to your very core.

and I want you to say this loud

“we are enough. “

I am enough.

With more…

Our God is a resurrection God. We believe in the resurrection of Jesus so we need to believe in the resurrection of our world, our country our people. 

Dont waste this time praying for what you had, pray for what you want your future to hold.

What has this time of fear, trouble, disease taught you?

What have you learned about yourself?

Are you going back into a job that you love, will you go back with renewed vigour? Will you look for a job that will fulfil you more?

When your children go back to school, will they go back with a more intense desire to learn, will you as their parents understand their way of learning better, be better advocates for them with a renewed understanding.

Have you learned of what you really need to survive? What is truly valuable in your life or maybe more importantly who is valued.

Will you understand yourself more, cherish your time more?

So often in life we forget that we live with the gift of resurrection. That we have the promise of more. So many right now will be heartbroken and believe me when I tell you I understand the pain of lost so deeply, so raw as if it was yesterday but I hold on to the promise of forever, the promise of our every tear being cherished.

May we come through this awful time and strive to live with more clarity, more truth, more time, more love and more hope. 

Memories cherished as memories are made.

I have just returned from a wonderful week in beautiful Wales.

I have loved every minute of it, from the beautiful sunsets to the endless beaches.

Its been a truly wonderful week.

It was a week I so needed, time to recharge and refresh my mind.

Time to allow the words to form and the passages to write.

I am feeling stronger that ever.

My heart and mind are on the same path.

This holiday was the first time I have gone back to this area of Wales without Livvy.

I honestly believed that it was going to have to be another first without her.

Yet it wasn’t because as I have enjoyed the views, cherished the sunsets and loved the ocean I have felt Livvy everywhere.

Memories cherished as memories made.

Dogemals 2015 Newquay 2015 west wales 2015

All together

My daughter returns from university today and yes I am so excited to see her.

So why did a friendly comment feel like I had been punched in the stomach?

My friend said “ I bet you are excited to have all the family back together’.

How simple and true is this comment.

Yes i am excited.

But my family will not all be back together.

You see there will always be a missing piece,

missing piece

 

An empty place at the table.

A pile of presents that have not been bought.

On Christmas day only three of my girls will be celebrating it here with me.

Heaven holds the celebration for the other.

I want to say that i’m ok about it all, that i can be happy and enjoy the season but I can’t.

The ache in my heart is getting stronger and stronger as we head towards the 25th.

I hate that on Christmas day I have to visit the crematorium, that the only gift I can give to my daughter is flowers on her stone.

I want the air to echo with her laughter, the harmony of my four beautiful girls to play.

Yet all i can hear is the silence of the missing note.

Christmas is a special time of year, I love the wonder of it all.

The excitement that builds in peoples hearts.

The joy of giving , the love that is shared.

Christmas is a time for celebration and I promise I will try.

Still I hope that it will be ok, that sometimes through this season i disappear.

Disappear to a place where i can allow the tears to fall.

Where I can allow the missing to show upon my face.

Because I cannot pretend all the time.

I just don’t have the strength.

I need to give my heart freedom.

Freedom to grieve my beautiful missing daughter.

Loving hard

Being emotional.

Is it a bad thing?

For many years now I have felt it is.

I have held back my heart, my feelings, my emotions.

And I feel suffocated.

 

Years ago when I was a teenager my Nan told me that wearing my heart on the outside would get me hurt.

She was talking about my heartbreak over a boyfriend at the time and she was trying ease my pain.

She said that I needed to hold my head high and act as if it didn’t matter and that i was ok.

I know she meant well but I believe I took that advice a little to literally.

 

You see I do love hard.

Its as simple as that.

But over the years I have held back.

Tried to be someone I’m not.

Taking words as emotional, dramatic, as insults.

Changing who I am to please others.

 

Even when Livvy died I never allowed myself to let go.

I didn’t fall apart, scream at God or generally let rip.

I held on.

I could tell you that it was to be strong for my girls, or my husband but that would only be partly true.

I held on because I was scared to let go.

If I let myself fall apart would i be able to put myself together again.

Well I was praying about this last night and God gave me this beautiful image of a mosaic and he reminded me that some of the most beautiful things in life are made from broken pieces.

Mary-And-Jesus-Mosaic

I have to allow myself to break,

Allow myself to really feel.

Holding back is suffocating me.

I can’t breathe.

 

I do love hard.

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It is who I am

I am emotional

I am dramatic

I am all or nothing.

But I love with all my heart.

I will fight to the death for those I care about

and I will be by your side always.

Remember if I love you, I will love you hard.

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Always

I am a mom that had to bury a child.

Yes I am that mom.

But I’m also a mom who was so very blessed.

I thank God every day that I got to be Olivia’s mom.

That I got to walk her journey with her.

Caring for this beautiful girl changed my life.

IMG_1629

 

I learned so much.

I learned about true love.

 

It’s not easy losing a child.

Wow what an understatement.

It’s so not easy 

I always will have a part of me missing.

Yet I would do it all again.

It a heartbeat.

 

Walk those hospital corridors

images

Wait those endless hours for appointments

Fill those never ending prescriptions.

 

When you become a mother you take on many roles.

Carer,

Protector,

Teacher

 

When you have a special needs child these roles extend

 

Nurse,

Chemist,

Advocate

Fighter 

 

At times it feels like each day holds a new battle.

And yes we do get battle weary

But our children are always worth the fight.

always

It’s my birthday

Today is my birthday I am 38 years old.

I cannot believe how amazing my 37th year has been.

I have finally found me.

That sounds crazy doesn’t it.

How do you lose yourself?

I don’t think i  actually ever lost myself because I don’t believe i had ever found myself before.

For so long I have tried to be who I perceived others wanted me to be.

Hiding my heart to keep others happy.

But its not honest and its certainly not a way to live.

 
I will be ok when I get my degree.

I will be better when I lose weight.

I will become nicer.

I will try to be kinder.

More open, more trusting

A better mom.

A better wife.

 

My list became endless and always out of reach.

 

No more.

 
I finally can see that.

I am kind hearted

I am a good friend.

Good mom.

Good wife.

I am beautiful.

I am so loved.

 
What a year!!!

I wish it hadn’t took 37 years to get to this place but hey ho I am here.

I am so excited to see what my 38th year will bring me.

I already have exciting things planned.

I mean I’m modelling for goodness sake.

Whatever happens I know it will be fun and filled with love, laughter and friendship.

What more can this birthday girl ask??

 

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