A beautiful place 

This week I’ve spent my first night in our local Acorn’s children’s hospice, giving the staff chance to get to know my little one whilst I’m on hand and I cannot believe how amazing this place is. 

When Livvy was still with us the word hospice filled me with fear. As far as I was concerned a hospice was where children went to die. 

I was so wrong it’s a place where children live.

In the last 24 hours I have seen so much laughter, 

so much love 

so much life. 

Children with smiles that light up a room, laughter than echoes through the corridors.

It’s a truly wonderful place , full of staff that really care for the children and for who nothing is too much trouble. 

I cannot believe how wrong I was. 

Yes it’s a place that cares for severely disabled children but it’s not the disabilities that are seen here it’s the characters, the spirits. Here in this special place children are simply that children.

It’s a welcome relief for parents knowing they have a place that their children can go and be cared for whilst they get their much needed respite. 

It’s a magical place where children can escape the boring parents have fun and laughter with friends.

Honestly it’s beautiful.

The support that families receive is second to none. I personally know of two families who walked the painful journey of losing their child with Acorns by their side. Of course it doesn’t stop the pain but having someone who understands is priceless. 

I have really enjoyed my stay here and I know little one has too. We are looking forward to more visits and the making of more memories. 

Please take a look at what amazing things Acorns achieve. 
  
The children and families they support

Acorns has helped over 2,470 children and their families since it was established in 1988

Last year2, Acorns supported over 760 children and more than 980 families, including those who are bereaved:

Acorns is currently supporting:

Over 250 children and around 340 families at Acorns in Birmingham3

Over 200 children and over 280 families at Acorns in the Black Country3

Over 190 children and more 250 families at Acorns for the Three Counties3

Read more about how amazing they are here

Please take time today to check out your local children’s hospice and maybe even consider making 2016 the year you decide to fundraise for them. Every penny raised in a penny towards keeping families together and children happy. The services and support is so needed.

For more information on Acorns and how you could support them visit here…

Let’s end October with a bang. 

For the last 23 days I have asked you to join with me and support my #nomoreemptyarms campaign. Asked you to upload an image with you and your loved ones with the hashtag #nomoreemptyarms. All this in hope that we could raise a discussion from the hashtag about Rett Syndrome, generating awareness and understanding is what I was hoping and praying for.
  

You all have supported me incredibly, and again I have been shocked at the momentum that the hashtag has created. My heart has been blessed by the comments, by the questions and by people saying “they didn’t know what Rett syndrome was but do now”. It’s been truly awesome. But now as we reach the last 8 days of October and the final days of the Rett Syndrome awareness month I’m going to ask you to do something more for me.

I’m going to ask you to donate £5 to Reverse Rett and do so in honour of my empty arms, my Livvy. 

  
I want you to join me in fighting against Rett Syndrome and shouting out loud #nomoreemptyarms

  

£5 may not seem a lot, a price of a coffee, a magazine but in fighting against Rett syndrome every penny counts. 

So please make a donation now in honour of my Livvy and for all the parents out there whose arms are now empty because of Rett Syndrome. Then tweet me, Facebook me or just let the world know that you have donated and that they can too. Help share the fundraising link far and wide.

I’ve just donated £5 to Reverse Rett because I want to make sure that there are #nomoreemptyarms you can to. https://www.justgiving.com/Nomoreemptyarms

Please do this for me in honour of my Livvy, do this for all the children fighting against Rett Syndrome today and please do this so that we can be fight together so that no other parent has to lose their child to Rett Syndrome. 

The cure is within our reach, make our hopes a reality. 
Please visit my just giving page. 

  
Please donate here today 

No more empty arms

I’m been thinking a lot about the fact that it’s Rett Syndrome awareness month.

Thinking about what it is we actually want to achieve.

Fundraising – yes

Awareness of the syndrome – Yes

Yet for me I want something more.

I want no mother and father to face the pain Alan and I have had too.

I want no brother or sister to cry themselves to sleep missing their sister.

Grandparents heartbroken.

I want no more empty arms.

So I decided that this month this is what I wanted to focus on.

Raising awareness and fundraising so that no mother or father is left with empty arms.

Rett Syndrome means I will never hold my daughter again.

So I’m challenging you all to help me raise awareness of this devastating condition.

Please take a photo of your child in you arms and upload it to your social media sites with the hashtag #nomoreemptyarms

Join me in raising awareness for Rett Syndrome.

Join me in stopping the pain.

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Also if you wish please consider donating to one of the Rett Syndrome charities.

Reverse Rett

Cure Rett

Or Via Olivia’s Page @ Girl Power 2 Cure . –