It’s your fault

Having a child with disabilities means I often find myself meeting with professionals who are supposed to be in place to support and guide me and make sure my child’s reaches his full potential. I use the world supposed because sometimes and some would say often this doesn’t happen.

I have met some amazing people who are incredible at their jobs and I have met some doozies who seriously need to either consider a career change or at least attend a training course on compassion, respect and understanding.

Yet thankfully I have never come across one like the one my friend has met this week. My dear friend is at breaking point she adores and loves her child with every breathe she takes but after literally sleeping for less than three hours on a good night for the last how many years she is broken. After asking again for the numerous time for a little support and respite she actually told a professional that she is close to breaking, she is physically and emotionally on her knees. To which the so called professional replied “well how is that going to benefit your child, you have a responsibility to keep yourself well for your child”. What the **** seriously I’m not sure how my friend stayed calm in this situation without demanding a manager or someone at a higher level but she did (I actually think she is just too tired to fight anymore). Yet how, just how can a someone say this, it’s not as if my friend wouldn’t love a good eight hours sleep each night, the chance to spoil herself and have a haircut, a night out on the town with the girls. She would desperately love this but as a sole carer, her child has and and always will be her priority. How is her exhaustion her fault?

I’m sorry but do people really believe this ? That parents of children with disabilities just cannot be bothered to take care for themselves.

Let me give you a little breakdown of my day,

It’s starts pretty much where yesterday finishes, I have medication to give at 12am, 6am, 8am, 12pm and 6pm. I also have an overnight feed to prepare from 12am till 7am, also another 8 Bolus feeds to give throughout the day.

I have a minimum of 10 nappy changes each day with all nappies weighed and recorded.

My child sleeps maybe 3 hours max at a time needing comfort, moving and generally loving throughout each night and that’s on a normal night. This can double or treble if unwell in any way.

To leave the house, besides feeding, changing and lifting my child into his wheelchair I also have to pack feeds, meds, and emergency protocols and emergency meds. I cannot ever just wing it and just grab my handbag and leave. His life depends on me carrying the medication he may need.

Let’s also realise that normal chores are often doubled or tripled, washing for example does not consist of the normal one outfit a day but the numerous we need from unexpected changes, sheets bedding etc etc.

Add to this caring for my child’s needs, dressing him, bathing him, moving him, lifting him and of course playing, amusing him and loving him.

Oh I almost forget I’m also my child’s personal assistant arranging, rearranging and chasing his numerous medical appointments, the EHCP paperwork, ordering his medications, his equipment and so on. I’m also his advocate fighting for the things that he needs to live with a quality of life he deserves, his voice and his fiercest defender.

So please tell me where or when I am supposed to take care of myself? And guess what I have a supportive husband, great older children and actually a care package that is working for me. For a professional to suggest my sole carer, 4 hours each month respite friend literally is bringing her ill health on herself makes me see red.

Times are hard, right now we have a government that believes everyone can make do a little more, well everybody besides the top 1% of course. My friend already has to make choices between sleeping and eating but hey I guess she can make do a little more. I mean who needs food? She loves and adores her child and so wants the best for him but all she was asking for was a little compassion and support, is that too much to ask?

If she does break and her child goes into a residential facility where he will need 2 carers to support him at all times he certainly will be costing this government so much more.

I actually didn’t know what to say to my friend when she told me what had been said, part of me wanted to go in kicking and screaming and demanding an apology for her. Yet I’m realising the problem is a lot wider.

When you have train companies believe it’s ok not to make trains accessible for disabled people, when you have superstores using disabled children for advertising whilst depriving them of the basic facilities to have their care needs met, I realise this world needs to change.

When you live in county where almost three quarters (72%) of carers have said they had suffered mental ill health as a result of caring, while well over half (61%) said their physical health had worsened.

You know things have to change.

I welcome the news released yesterday that a joint report by two Committees of cross party MPs, the Housing, Communities and Local Government and the Health and Social Care Committee, calls for new contributions from individuals and employers into a dedicated fund to be ringfenced to help pay for the growing demand for social care in the future. Highlighting the immense strain that the current system is under, including families providing unpaid care, the MPs have proposed a series of measures including a new “Social Care Premium”.

But there is a long way to go..

Figures released by Carers UK show that

1 in 8 adults (around 6.5 million people) are carers

By 2037, it’s anticipated that the number of carers will increase to 9 million.

Carers save the economy £132 billion per year, an average of £19,336 per carer

Over 3 million people juggle care with work, however the significant demands of caring mean that 1 in 5 carers are forced to give up work altogether.

Carer’s Allowance is the main carer’s benefit and is £64.60 for a minimum of 35 hours, equivalent to £1.85 per hour – the lowest benefit of its kind.

People providing high levels of care are twice as likely to be permanently sick or disabled

72% of carers responding to Carers UK’s State of Caring Survey said they had suffered mental ill health as a result of caring.

61% said they had suffered physical ill health as a result of caring.

Over 1.3 million people provide over 50 hours of care per week.

Again I will stress there is a long way to go.

Yet how hard or how little would be needed for those professionals in the lives of carers to actually think before they speak. To actually show compassion without passing judgement.

My dear friend hasn’t the energy to ask for an apology and right now is literally holding it together in her words “with Gods grace and the love of my boy”. But how many more are out there struggling feeling alone and broken?

I know how hard it gets and as I have said I am one of the lucky ones.

All I hope is that change will come but until then if you are struggling, if you are feeling alone please get it touch because none of us can do this alone but together we can and will make it.

I’m on the T.V

So a few weeks ago I blogged about my youngest daughter winning the Mayor Civic award  due to this amazing achievement Brodie and I were asked into our local tv station to share more about the award and Livvy.

Take a look at our interview here.

Be kind, I love to talk and Brodie bless her got stage fright.

 

 

If you want to learn more about Livvy’s Smile check out our website Livvy’s Smile and if you are interested in joining us to celebrate Livvy’s 16th Check out the facebook event here…

There has to be a line they don’t cross.

I’m on holiday right now trying hard to deal with memories that are haunting me whilst creating new ones to cherish and love.

Yet even here in the middle of nowhere I cannot avoid the arguments and discussions following the interview given by Samantha Cameron about the loss of her son Ivan.  

Part of me wants to be naive right now and believe that this a mother just opening her heart about the pain and devastation she has felt from the loss of her son.

I want to remember the shared look we exchanged as we acknowledged the loss of our children. How that brief moment in Downing Street span across economic backgrounds into empathy and shared understanding.

As a grieving mother I cannot imagine a mom using this loss as a campaign tactic.

Please no.

Yet as naive as I wish to be the Cameron’s  have already proven that all experiences, all struggles are open for exploitation.

We remember David Cameron telling us he understood  how hard it is to raise a disabled child. How he will be supporting families as they struggle. Only for him to walk back over all his promises in a dramatic fashion. With cuts to services and benefits that have dramatically left people struggling to survive. 

Cut in services

Bedroom tax 

Local government budgets being slashed leading to less respite, play schemes etc etc.

And so much more. 

Even now if leaked information is to be trusted if the conservatives stay in power there will be more cuts coming to those who are disabled and those caring for them.

To be truthful I am lost for words. 

The whole situation is making my stomach ache.

I want to believe that this story, that Samantha Cameron’s interview is not part of the campaign trail.

I want to honestly believe that she is not exploiting the hearts of those like myself who grieve desperately for their child.

In fact I have to believe this. 

To accept anything else would make me question humanity.

Would make me question everything.

Surely there has to be a line a political party won’t cross?

   

The crazy bunch of people I love.

So after I  had published my countdown post to Special Kids in the UK I found myself re-reading it from the perspective of someone who didn’t know the people I was writing about.

 

I wondered if I had given you the impression of a camp that was about disability and only disability.

 

Now after spending a crazy wonderful week there I want more than anything to give you a little more insight into who we really are.

 

Yes Special Kids is a charity which was formed by parents with children with disabilities for the use and support of other parents in the same situation.

 

It is true that this is the life we live, but it isn’t all we are.

 

We are fun crazy people that have somehow found ourselves in the world of disability.

 

Yet we aren’t just parents and carers of children of disabilities and our children are far more than just syndromes and conditions.

 

We are a diverse group of people.

 

From wine drinkers to tee-totals.

 

Drag queens to doctors.

 

We are sporty, creative, energetic,caring, imaginative and eccentric.

 

We have parents with full time careers and we have stay at home parents (a full time job in it’s own right.)

 

We are each unique and that’s why it works.

 

We are different but united.

 

Please don’t imagine this camp as a group of people sitting around a camp fire full of woe me for life.

 

You will find us sitting around that said fire laughing at the antics of our young adults, roasting marshmallows chatting into the small hours.

 

You will find us dressing up in weird and wonderful ways, wheelchairs transforming into race cars and families transforming back into the stone ages.

speshfest 2014(2)

Sharing life with others that understand that really get it.

 

Life is about living and the people that I camp with understand that more than most.

 

Special kids in the UK camp is about support and compassion but mostly it’s about friendship and laughter.

 

I am so blessed that I get to call this crazy bunch of people my friends.

speshfest 2014

 

So thankful that one day about 9 years ago i came across Special Kids in the UK.

 

I love these guys xxx

 

*Credit for the photographs go to members of Special kids xxx

 

My A-Z of Special Kids in the UK camp.

The last few days I have been having a fantastic time at Special Kids In the UK camp.

I wasn’t sure how to describe my time away until I wandered past a group of campers playing the A-Z game in a rather unique way.

So here is my time at camp from A-Z.

 

A – Amazing

B –  Beer o’clock

C –  Caring

D –  Drag queens

E-  Enjoyment

F-  Friendship

G –  Games

H-  Hugs

I-  Informative

J-  Jumping

K-  Karaoke

L- Livvy & Lucy- Mai

M-  Memories

N- New friends

O-Old friends

P- Pig roast

Q- Quality

R- Restore

S- Special

T- Tea tent

U- Ugly bug ball

V- Volunteers

W- Wobbly walkers

X- X-citing

Y- Young & old

Z-zzzzzzzzzzzzz

 

Is it my fault my child is disabled?

When my late daughter was born I contracted MRSA and was so very ill. I was trapped in hospital in isolation not allowed to see my children including my precious newborn.

 

I blamed myself for such a long time as I knew how important those first days of bonding were.

 

When Livvy’s regression started I was told so many things including “I have to accept that not all kids are the same and that I should be grateful for two bright kids”. “Are you lonely and want attention” “you are neurotic” to the worst one from a doctor “I think you want there to be something wrong with your child”.

 

I was broken I had this child who had gone from a pleasant baby, toddler into a screaming child

who wouldn’t even look at you.

 

The doctors eventually diagnosed global learning but I wasn’t convinced they just wouldn’t listen when I told them she used to walk, talk and engage with you. They just smiled and brushed over the subject.

 

I honestly thought I was going mad. Yes I was exhausted I had a 5, 4 and 2 year old to care for. I started to let the words of the doctors convince me I was wrong. Maybe I had missed the signs, I mean I did have my hands full.

 

I had lost my baby girl into a world that she wouldn’t let me access I was devastated. Maybe it was my fault. If only I hadn’t got ill. I hated myself and was sure I was the worst mom in the world.

 

I sat at toddlers groups watching Livvy scream when other children came close. My heart was in pieces.

 

In the end I retreated, my own world was safer.

 

Then Livvy’s seizures started. The first one scared me so much I nearly dropped her. Febrile convulsion I was told, twenty more later the doctors were confused.

 

The same doctor who had accused me of wanting to believe my child was ill was now informing me that I had a very poorly child and was looking worried.

 

Was this my fault again?

 

Life got crazy, nobody had any answers until a community paediatrician handed us the words Rett Syndrome.  A week later the neurologist confirmed it.

 

I didn’t want this diagnoses but the more I read into it I realised i wasn’t to blame.

 

I couldn’t have caused it.

 

Something inside of me changed right then as I read the research into the condition.

 

“Baby girls are born “normal” but begin to lose acquired skills between the ages of 1-3 years old. ”

 

See I wasn’t wrong.

 

This gave me so much strength. I wasn’t a bad parent, I hadn’t let her down.

 

It wasn’t my fault,

 

This realisation gave me the courage to break the chain of lies that were in my head.

 

No more.

 

I was determined to do as I had been.  Being the best mom I could to my now four beautiful girls. I armed myself with knowledge to quieten those who shared their ignorance with me and believe me many still did. I don’t believe it was with malicious intent but my goodness some people do need to think before they speak.

 

The darkness began to lift and I realised that it had been the fear that her condition was my fault that was slowly eating me up inside robbing me of my joy.

 

It’s not easy when you realise your child is disabled. You question everything you did. I ate healthily when pregnant. Didn’t drink or smoke.

 

Yet somehow the comments from people and professionals had cast doubt in my mind.

 

Was it my fault that my daughter was disabled?

 

No it blooming was not.

 

It was one of those things in life that just happens it was caused by a single gene mutation that leads to underproduction of an important brain protein.

 

I couldn’t be responsible for that.

 

This knowledge set me free and the fear dispersed.

 

I was then able to live life for the gift it was.

 

Livvy emerged slowly from her own world and her mischievous spirit started to show.

 

My other daughters just grew and bloomed.

 

Life was good.

 

Then in 2008 we lost my beautiful girl.

 

As the pain tore into my soul the words “it’s your fault ” returned to mind. “You should have seen, you should have known.”

 

Thankfully, I can’t believe I’m writing this but thankfully the inquest told me otherwise. Livvy had lost her battle to a rare virus and the complications of Rett Syndrome.

 

There was nothing I or anyone could have done.

 

One thing I have learned this last few years is that even with the truth in their faces some people will believe what they want to believe.

 

Maybe it’s ignorance maybe at times it is spite.

 

I can only be responsible for my own mind and my own thoughts.

 

I was blessed to be Livvy’s mom and nothing or no one will ever take that from me.

 

 

I honestly believe the whole process of the diagnosing of children’s disabilities need to be looked at.

 

Doctors, health professionals need to listen closer to parents. We may not have the medical degree but we do know our children.

 

If doctors had listened closer to me when Livvy first went into her regression her diagnoses would have come sooner. But also I personally wouldn’t have had to face the internal pain believing it was my fault.

 

I’m sharing this today after reading my friends blog over at Autism and love. Although our journeys are very different again I see how easy you can be left believing your child’s disability is your fault.

 

The time up to Olivia’s diagnoses was so hard. Hearing words like “naughty child” or “attention seeking” leaves you feeling so very lost.

 

Health professionals need to be more aware of the impact that statements like this leave on a parent . To be aware of what they must be feeling. No one plans to walk this pathway so more support is so needed.

 

Finding out your child has a disability is so hard. You have to let go of many dreams you had for child’s future. Let go of the life you used to have.

 

But with the right help, support and friendship your life can and will be a good one.

 

My life is so different because I got to be Olivia’s mom and for that I am truly grateful.

wonderful gift

 

 

 

 

It’s countdown time.

So the official countdown for Special Kids In the UK camp has started.

 

Though for many it began the moment we pulled away last year.

 

How and why is this camp so important?

 

So special to the members of this charity?

 

Well to be honest its pretty simple.

 

For the most part we live our lives on the outside.

 

Exclusion is not only for our children but us the parents and families too.

 

In an ideal world I would be writing about inclusion and community but when your lives consists of endless hospital visits, medications, physio, adaptions, assessments and so much more.

The conversations are rather different to many around you.

 

 Life is so very different. 

 

This is why this camp means so much.

 

For a week each year we are inclusive.

 

We all understand.

 

We live on the inside of our own special world.

 

I am so excited for this years camp.

 

I can’t wait to relax in a place where I know people get it.

 

Where friends have become family.

 

I may not know everyone’s name but I know they understand my life.

special kids 2

 

I love the fact that this time next week we will be laughing around  the communal  BBQ.

 

Watching the men become BBQ kings.

You have never had a sausage until you have a Special kids in the UK sausage.

Yes i really wrote that ha ha.

 

Kids will be dancing in wheelchairs and jumping on bouncy castles.

 

There will be wheelchair races with screams of go faster.

 

Wobbly walkers and fun running battles where often the older show the younger how its done.

 

There will be tea parties with strawberries and cream, cakes and more cakes.

 

Dvd nights and wine fuelled chats under the stars.

 

I cannot wait.

 

My children cannot wait.

special kids 1

 

I am bias I  do so love Special kids in the UK. 

 

Some of these people have been my friends now for over 8 years, they have walked beside me through the dark times.

 

They have held me when I have cried.

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They have laughed at me and with me.

 

Whatever the dally battle of raising a child with special needs brings I know that somewhere on that forum is advice and compassion.

 

I think Special Kids In the UK is unique, its not aimed at any particular syndrome or disability.

 

In fact many of our kids are undiagnosed.

 

It’s just a place that offers friendship and support whatever the situation or circumstance.

 

I love this crazy bunch of people.

 

We are so different yet so alike in our desire and drive to give our children the best quality of life we can.

 

So yes I am counting down the days to next week.

 

To when I get to pull up on that Field in Wem.

 

When I get to find my little place in this world that makes total sense.

 

The camping field of Special Kids in the UK.

 

 

 

 

 

Look what we did.

There are very few days in your life where you can look back and see all that you have accomplished.

Monday was truly one of those days for me.

With my charity Livvy’s Smile we hosted a fantastic memory making day for over 60 children with special needs and their families.

It was a truly perfect day.

I could tell you about the laughter that filled the centre.

I might mention the new friendships that were created.

But in this instance I’m going to let the photos speak for themselves.

Livvy snap 2014 (1) livvys snap 2014 (2) livvys snap 2014 (3) livvys snap2014 (4 x 2)

It was a wonderful day and although now I am physically and emotionally exhausted I am super proud of all that we have achieved.

Our charity is run in honour and memory of our beautiful daughter Olivia who lost her battle with Rett Syndrome in 2008.

Olivia was an amazing girl who had a real zest for life. Mischief and mayhem were her two favourite things.

I think she would be happy with the magical day created in her memory.

I’m also so sure she would think her sisters are amazing because I certainly do.

Newlife- Making a difference

A number of years ago Alan and I were parents surviving on little or no sleep. This wasn’t due to the demands of a newborn as you would expect but because of our severely disabled daughter and her severe epilepsy.

Every night we faced the dreaded pounding of the cot sides as our daughter whacked her arms ravaged by a seizure.

We were in desperate need of a specialist bed but the words “not funded” were becoming the norm.

Well that was until the community nurse asked us if we had heard about a charity called Newlife Foundation for disabled children.

Newlife_Foundation_Logo

Well we hadn’t but they soon became known to us as the ones who gave us our first night sleep in years.

So now ten years later when I was asked as a blogger if I wanted to go behind the scenes and learn more about the charity I jumped at the opportunity.

So this is me telling you about the amazing charity known as Newlife.

Since its beginning in 1991 Newlife have kept at their heart the needs of disabled children and their families.

Raising funds to support and advocate for disabled children and terminally ill children across the UK.

Newlife is rather unique its its fundraising “actually earning most of the funds needed by operating a successful recycling company which offers environmentally sound services to major retailers, manufacturers and brand holders from across the High Streets of the UK sf increasingly in Europe. All profits from this recycling company are donated to Newlife.”

My girls and I take advantage of this recycling company getting some great bargains.

Newlife are a fantastic charity and offer support and guidance with real compassion. After only spending a few hours with the staff I could see and feel the passion for what they do.

They have four key national activities.

Nurse Services

A free national helpline which supports and informs families. Its confidential and trusted. Nothing is too important or trivial to discuss with a Newlife nurse.

A Newlife nurse can help discuss the grants needed for essential equipment and progress those which may be funded straight from Newlife funds or help provide information of grants available nationally from other sources.

karen

The nurse service has provided families with a professional listening ear since its origins in 1993. Since 2004 the service has directly helped over 35,000 people at the number of families continue to grow.

I know I have spoken to friends who have disabled children who tell me that this service has been a lifeline for them. Even when they cannot physically help, their kindness and willingness to listen has really supported them. One friend told me that she was at rock bottom and it was a Newlife nurse that lifted her up.

Personally I think this is an incredible service and one I know is highly regarded in the disability community.

Equipment Services.

One of the biggest issues when raising a disabled child is the cost of equipment. This is a major area of a families life and can effect everyday. The constant battle to get what your child needs is something I am so aware of. The time needed for assessment through statuary services left us struggling every night for a number of years only to reach the end of the assessment to find that although they agree there is a need they do not have funding left us exhausted and in pieces.

This was when Newlife came to our rescue and to the rescue of over 7000 children nationwide.

I really want to state that the equipment I am talking about isn’t just added extras that would make our children’s life brighter. It is vital equipment that is essential to a disabled childs life.

These have included pain relieving beds, wheelchairs, communication and other aids.

Newlife grants have funded over £10 million in equipment changing the lives of disabled children and their families all over the UK.

We were one of the families that was helped right at the beginning. On my visit I found out that Olivia’s bed grant was number 147. I cannot describe in words the impact that having a bed that protected my little girl when she slept when she seizured made to us as a family. To be able to sleep without fear was such a gift to us. To able to sleep without hurting herself made such a difference to Olivia.

Newlife also offer an amazing ‘Just Can’t Wait Service’  this provides loan equipment to terminally ill children nationwide. This is an incredible service as it has allowed terminally ill children to be cared for at home rather than in hospice. As one who knows the importance of every second counts I know this loan scheme has really blessed many families.

Newlife also offer a ‘Play Therapy Pod’ scheme this is the free loan of specialist development toys for families who care for a disabled or terminally ill child. Each pod consists of a variety of specialist toys that suitable for the age and ability of the child. Some of the greatest teaching can be achieved through play, so again a fantastic service.

Medical Research

This was a something I was not aware that Newlife were part of so I was extremely surprised and encouraged to learn that over the years Newlife has funded over 220 research projects at over 50 leading institutions around the UK funding around 15 million in research.

Can I get a collective WOW.

Chatting to the staff from Newlife it was evident that they were really passionate about this area hoping that one day grants won’t be needed as treatment and cures for disabilities will be so advanced.

I know I too have this hope.

Let me show you some numbers

15 million invested in child health medical research

70 young doctors directly supported through investment in research training, leading to improved child care and research.

50 genes identified, through Newlife research, aiding diagnosis and treatment.

220 grants funded for pioneering research.

59 The number of leading institutions where Newlife has funded medical research.

How amazing are Newlife !!

Campaigns & Awareness

Raising a disabled child is hard work there is no way to hide from that but at times what makes it worse is the constant battles we face just to get the help that we need. Newlife listen to parents and carers and take these messages, these struggles to the policy makers through their campaigns and awareness activities. They have become the voice of the families on important issues and they have helped to overcome the isolation many face.

As a leading charity Newlife are often consulted by Government on major issues around healthcare, services and policy. They also liase with local authorities and local health care providers to ensure policies regarding provision are fair and reasonable. The excellent relationships they have with these professional bodies allow them to raise awareness about the needs of children and their families.

 

Seriously I attended my visit to Newlife believing I knew most of what they did as a charity but honestly I hadn’t a clue. The work and the people they support is simply marvellous.

On my visit to their superstore the staff at Newlife asked me for two things.

Firstly and in their words ‘most importantly they wanted me to raise awareness of what services they offer. They honestly wanted more families to be informed about how they can help them.

Secondly like every charity they need our help. They need people to come forward and support the charity and help change the lives of disabled children and their families.

Newlife receive no government funding so every equipment grant, every research grant and every policy change has been funded by their supporters. So obviously the more support they get the more difference they can make in the lives of children and their families.

They have a great number of ways you can support them.

Visit the Newlife stores

Run a marathon

Hold a cake party

Host one of Newlife’s Sparkle parties

Be part of Newlife’s annual Santa Dash

Leave a legacy gift.

Visit the Newlife’s Facebook page for more ideas on how to get involved.

There are seriously so many ways you could get involved. Get your workplace on board, your school.

Every penny raised makes a difference, I know this personally. Newlife gave our family peace of mind. We could finally get some sleep knowing that Olivia was safe from harm. I cannot stress how much that meant to us.

Newlife is an incredible charity and although this is a rather a long post I haven’t touched on all they have to offer.

Over the next few weeks I will be continuing with a series of blog post regarding Newlife. I want to share some of the fun ways that you can support them.

So stay tuned there is more to come.

Lastly I want to leave you with a short video that really shows how much Newlife changed our lives.

 

 

 

Giving my child a voice – MyChoicePad

Writing this blog over the last years has allowed me to experience opportunities that have given me wonderful memories. It has also allowed me to review things that have really made a difference to my life but nothing has really come close to making a such an impact like this item I wish to share with you.

This has given my foster son a voice.

When our kids are born we wait excitingly for their first words yet for a number of children these words don’t come.

Now this could be for a variety of reasons including shock and trauma but for the most part it is because of a disability.

This is the category my foster son falls into. Due to a learning disability he has no real communication.

So when approached by Insane Logic the creators of the communication tool MYchoicePad to review this educational  app I was super excited.

MCP Logo No BG

Disabled children can use a number of ways to communicate including verbal language, sign language and communication symbols.  This app offers them the chance to use all three.

Launch Blog Post 2

Within the app You build grids in which the child structures a sentence from. The MyChoicePad Pro offers a wealth of vocabulary which can be personalised to the needs of the user. The package offers over 4000 makaton symbols.

You can build grids specifically to the child’s interests and activities.

IMG_0681

A sentence is formed with Makaton symbols which the child then plays out verbally.

This allows the child to communicate with both those who understand Makaton and those that don’t.

One of the added bonus of this app has been the videos that accompany the makaton symbols. These videos are essential in helping you and your child use and learn makaton signs.

See it, hear it, sign it.

The reach of this app is endless and that is why it is already being used by speech and language professionals across the UK.

With this app

A child can tell you how they are feeling.

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Their favourite foods.

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What they have learned at school.

Image 3

Seriously the scope is incredible.

Personally for me this app really became priceless when my foster son told me this…

The look of joy on his face to be able to share his feelings and for me to understand them was incredible.

Now after years of looking into communication aids for my late daughter Livvy I was well aware of the cost involved. So imagine my surprise and joy when I found out that the pro version could be downloaded for a price of £129.99  this is simply amazing.

Truthfully I feel as if I am only touching the surface of what this app has to offer.

Please check out the MyChoicePad website and contact any of the staff. You will find them willing to walk you through anything and everything. They also offer different packages and training.

Seriously I am so impressed with MyChoicePad and happily recommend it.

MyChoicePad is currently available for Apple iPad. An Android version will release in Spring 2014.

MyChoicePad is free to download and includes Stage 1 of Makatons Core Vocabulary. MyChoicePad Pro, which includes over 4000 Makaton concepts and aimed at professional organisations, can be purchased for £129.99.

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