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"We carry with us, as human beings, not just the capacity to be kind, but the very choice of kindness" – R J Palacio

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The Journey Begins

On June 19, 2018June 19, 2018 By rebelwithkindnessIn Uncategorized

Thanks for joining me!

Good company in a journey makes the way seem shorter. — Izaak Walton

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Bravery ???

My son

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Cheeky monster xxx

Now we have Daniel's operation completed I need to get my bum in gear for Christmas. Any suggestions for my gorgeous boy xx

As much as it pains me to stand up for a Tory I can tell you that wealth has no play in grief. No about of money would protect you from the loss of a child. Grief is the best leveller. I'm personally met Samantha Cameron and her eyes held the same pain as mine, her money did not protect her from this. Feel free to comment on the mans appaling politics or the damage he has done to our country but leave this personal heartache out of it.

So we are home and I'm so thankful yet I cannot get my head around the fact that Daniel was in intensive care on Thursday and is home now. How grateful I am yet my mind replays the images of those hours of fear. Due to Daniel's endocrine issues it was decided that he would be moved from surgery straight to the paediatric intensive care unit. The surgery went well and we waited in the PICU for him to wake up. This is where things changed, the expected thirty minutes turned into an hour and Daniel was unresponsive and was completely ventilated not making any effort to breathe. I cannot explain how just sitting there watching a machine that saying patient not making effort, no effort made me feel I couldn't breathe, I was just standing them praying for him to breathe for himself. Please boy come on. Thankfully over two hours later Daniel started to rouse, this unfortunately was where it got really scary, he starting to choke on the ventilator tube and honestly he was blue, all I remember is screaming. I was back 10 years in a instance seeing Livvy there on the bed blue and gone. I honestly thought I had lost my boy, lost another part of my heart. Thanks to the amazing staff at Birmingham Childrens hospital my boy is now home and besides being in pain from the operation he is doing amazing. I am trying to move forward but I did want to explain why I have been not replying to all the lovely messages i have recieved. I think I'm in shock, the nurses suggested it was PTSD and that maybe I should speak to someone about it and maybe I will but right now I just want to say thank you for the love, support and prayers we have received. Please keep them coming for my beautiful boys recovery. What a couple of days.

I think someone is pleased to be home xx

On our way home xx

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