When I saw today’s word I was surprised by how apt it is for me and the time I’m in now. As tomorrow is the launch date of my story, a book that shares the journey of the life of my late daughter Livvy.

I haven’t written the book, I could never find the way to detach from the moment to write in clarity. It’s been written by an amazing man who over the last year has let me cry on his shoulder, encouraged me to remember and then used his words to explain my heart to honour my daughter.

It’s not been easy I have to surrender my heart and my soul, to share truthfully and openly my story. Allowing my mind to go to places that it’s had tried to protect me from. Having to surrender to the pain I faced to find the words to bring reverence to the courage of my beautiful daughter.

Yet as I sit here excited for release day tomorrow I confess I am nervous. Tomorrow between these pages those that read it will know my heart. They will walk my journey through Olivia’s life with me. I’m not expecting judgement, I’m not expecting dislike but transparency can come at cost.

Still it’s a cost I’m willing to pay in hope that one more person learns of the devastating condition of Rett Syndrome. Learns what each and every girl has to face each day. Understands maybe a little more the pain and anguish the parents and families face.

I’m surrendering my soul in awareness, sharing my heart in hope.

Hope that those that read will learn of the condition, pray that one day a cure will be found for this evil syndrome.

But more than this I hope and pray that people learn that life is a gift not to be kept perfectly wrapped up in a pretty bow but a life that should be ripped open and enjoyed to the max.

I learned the hard way that none of us have the promise of forever, but we all do have the gift of today.

Go live it xxx

Joining in again with the Five minute Friday party.