I sat through a professionals meeting a few weeks back where one of the “so called” professionals professed to tell me the limitations of my son. He can’t do this, cannot control that and he probably won’t do this. I have to admit my first reaction was to lose it but I decided to let her have her say before I spoke. You see it’s easy for people to look at my son and tell me what he cannot do but I want to work with someone who can tell me what he can or what he could.
I’m certainly not naive but I will refuse to have a so called professional have her opinion especially in this case when it’s formed after a 5 minute assessment.
Listening to this woman I was again aware of some of the preconceptions people have of children with special needs and how they extremely frustrate me.
How it’s so important to surround myself with people who believe in ‘never say never’ or the endless possibilities of life.
My friend and I were discussing our family conversation this weekend, this is part of our sons EHCP plans. Where the question is asked “what does your child want to be when older”? Let’s take into consideration that my child is 3 and hers is younger. Who the hell knows what they want to be at 3. Anyway we both giggled as we had both separately written astronaut, and why not (ps I love this about my friend). Yes maybe Daniel’s chronic lung disease would put a stop to this but who knows medical science is changing everyday. I’m sticking to my family motto of “never say never”.
Why do we place limitations on our children?
Why do their disabilities have to be what defines them?
You see to me Daniel is a cheeky little man who loves to flirt, especially with his nurses. His comic timing is perfection and his giggle well it warms your heart. He is also one of the strongest people I know entering this world at only 26 weeks and fighting against prematurity, meningitis and a heck of lot more. He has raged battles against his disabilities and his illnesses and thank God has been the victor.
Who would dare put limits on this boy!
I know I’m not, whatever the future holds I want to be surrounded by people who believe in my child.
Because I believe in him.
So glad I’ve found you again Sara and wonderful that you’ve added Daniel to your family, what a lucky boy he is to join you all and have you fighting his corner. Mich x
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