This was taken in May this year and it was the first photograph of Daniel without his NG tube. It isn’t my favourite because it’s the first without his NG but because of my relief of seeing that smile after surgery.

There is nothing worse that handing your child over to surgeons and theatre staff, you have to trust them with your heart. This gastrostomy surgery was the first we had faced with Daniel and nothing could have prepared me for the fear I felt as I left the theatre, my legs literally felt like lead. I could barely breathe for the hours he was in down.

So this photo is my moment, the moment I could breathe again.