October is Rett Syndrome awareness month and normally each year I am sharing here and everywhere as much information as possible to raise the awareness on this syndrome.
This year I have struggled.
Not because it isn’t as important anymore because it definitely is, but because I am angry.
I’m so angry that Rett Syndrome is still taking children from their parents.
That Mother’s, fathers ,sisters, brothers grandparents are broken hearted.
I’m angry that my friends have to go to sleep each day just praying that their child will awake in the morning.
I’m furious that so many are in hospitals fighting infections, seizures, recovering from seizures. Families separated, families struggling.
I’m frustrated that no matter how far the research is coming Charities are still being the ones to fight for funding to save our girls. That government funding is few and far between.
It’s another year, another October and we had lost another.
Another too many
Another too soon
Another heart broken.
So yes October is Rett Syndrome awareness month but for those fighting against this syndrome October is another month in a year full of battles, heartache and fear.
I’m so angry at Rett Syndrome.
We need a cure and we need it now.