Yay its October the month of darker nights and Halloween but for me it’s also the start of my #nomoreemptyarms campaign.
It’s the time when I drive you all insane with information about Rett Syndrome and the great need for research and fundraising for a cure to be found.
The time when I ask you to join with me and share your photos on all your social media sites.
I want all your friends, colleagues asking you about the hashtag. I want everyone everywhere learning about Rett Syndrome.
I want #nomoreemptyarms to be in every timeline, Instagram, Facebook, Twitter, Tumblr and all those I have yet to learn to about.
Because awareness is so needed.
So many times when I speak about Livvy and share what I lost her to people ask me “what is Rett Syndrome”.
Its still so relatively unknown.
I want people to know that Rett Syndrome is a rare neurological disorder that affects mainly girls but also boys.
That every 90 minutes a girl is born with Rett Syndrome.
That children lose their lives to the complications of Rett Syndrome.
Why am I asking you to share just a photo?
Follow me over to the to read why ………
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