Last night my dream was so vivid that it felt so very real.
I was curled up on the sofa and under my arm with her head in my lap was Olivia.
Just lying there giving me a sweet cuddle.
I woke with tears rolling down my face.
An emptiness in my heart.
I just wanted to go back to sleep and just hold her one more time.
To stroke her soft cheek.
To play with her sweet curls.
Rett syndrome has robbed me of moments like this.
It took away my child.
While this dream did make me cry it’s also made me more determined.
Determined to really push the #nomoreemptyarms campaign.
To encourage parents, grandparents, brothers, sisters.
Aunties ,uncles, friends
To all give each other a hug whilst taking a photo and uploading with the hashtag #nomoreemptyarms.
To take a moment to make a memory.
To encourage people to learn about Rett syndrome and what it takes from our children.
We may be half way through October the month of awareness for Rett Syndrome.
But there will be no slowing down.
In fact I’m going to drive hard to make these last weeks really make a difference.
Going to push forward so that Rett Syndrome gets the awareness it so needs.
For people to understand, to learn.
Let’s do this.
Let’s say no to Rett Syndrome.