I’m been thinking a lot about the fact that it’s Rett Syndrome awareness month.
Thinking about what it is we actually want to achieve.
Fundraising – yes
Awareness of the syndrome – Yes
Yet for me I want something more.
I want no mother and father to face the pain Alan and I have had too.
I want no brother or sister to cry themselves to sleep missing their sister.
I want no more empty arms.
So I decided that this month this is what I wanted to focus on.
Raising awareness and fundraising so that no mother or father is left with empty arms.
Rett Syndrome means I will never hold my daughter again.
So I’m challenging you all to help me raise awareness of this devastating condition.
Please take a photo of your child in you arms and upload it to your social media sites with the hashtag #nomoreemptyarms
Join me in raising awareness for Rett Syndrome.
Join me in stopping the pain.
Also if you wish please consider donating to one of the Rett Syndrome charities.