I had a message the other day regarding how often I post regarding a disability issue and I wasn’t sure how to take it.
To be honest at first I was rather cross but then I thought back to before Olivia was born.
I knew nothing about disability.
I had a disabled cousin but besides the occasional visit I really wasn’t affected by it.
Never really had to think about it.
Then I realised “that’s it.”
Unless we live it or someone close to us does we really haven’t a clue.
Why should we?
I don’t mean to be trivialise it but I know nothing about space engineering as it doesn’t effect my life.
So why should be people whose life isn’t effected by disability understand it?
So I guess what I’m trying to say is this.
I do understand why people may be a little tired of me posting about disability.
Yet I won’t apologise for it.
Because disability does now affect my life and has done from the moment my beautiful daughter was born.
It was a complete shock to me and I found myself immersed in a world that I knew nothing about.
It was scary.
Though one of the biggest issues I faced was other people.
The lack of awareness made for some hurtful moments.
Ignorant comments and so much more.
It wasn’t always negative though a lot of people wanted to understand.
They wanted to learn more so they could help us more.
Still personally the real issue i faced was the isolation.
Not knowing where to turn to for advice and support.
I write in hope that maybe one post will help someone feel less alone.
So yes I have been writing about disability a lot but that is my life.
And the truth is I didn’t choose it but I love it.
When Olivia died it would have been easy for us to leave the disability world.
To go back to having a normal life and never thinking of medical appointments, wheelchairs or anything to do with special needs.
But we couldn’t.
This life had become our kind of normal.
The children and the families i met because my child had a disability had become my friends, my family.
Caring for a disabled child became my vocation.
So yes I write about disability and I always will do.
Simply because it is my life.
I can’t and won’t apologise for that.