I’m so excited and can’t wait to share this news with you all.
My late daughter Livvy has been chosen as one of the 195 girls to be honoured by Team Sparkle in the So Cal Ragnar Relay. 6 amazing women are running 195 miles for 195 girls with Rett Syndrome. “195 miles” that works out about 30- 35 miles each, can i just say OUCH.
Livvy’s mile is number 171 and is being run by a Rett mama Allison Foley.
As you can imagine I am super excited having Livvy honoured in this way it has certainly blessed my heart. But I’m also so happy to be part of this amazing fund-raising event dedicated to funding the research into curing the devastating condition Rett syndrome.
I am seriously stoked to be part of this event.
So why am I telling you guys all this?
Its simple I need your support.
I am hoping to raise $100 to support this amazing cause.
Seriously no donation is to small, it all goes to an amazing cause.
Please check out Team Sparkle Facebook page and learn more about this amazing ladies.
Make a donation, please let them know its made in Livvy’s memory.
Also go check out Livvy’s Page over at Girl Power 2 cure, I am slightly bias about this charity as they have been strength to me in times of weakness and have given me comfort in times of sorrow. But more than that they give me opportunity to honour Livvy and to keep her memory alive by fighting alongside them against Rett syndrome. To quote Kelly Butler from GP2C ” once a Rett mama always a Rett mama” I can’t tell you how much I needed those words.
So thats my exciting news for the day, lets support Team Sparkle as they support our girls.