Dear Olivia – 5 years too long xxx

Dear Olivia

Today marks the 5 year anniversary of your death. Anniversary sounds so wrong. Its meant to be the celebration of something. But I don’t celebrate your death, how could I when the missing of you has left my heart beating to a broken beat.

I can try to celebrate your life but even that isn’t so easy when all I want to do is scream that a life lived only for nine years isn’t enough.

Though as quote states “life is not measured by the breathes we take but the moments that take your breathe away.”

Now these are the moments I can relate to. Those one in a million moments that’s you packed into your short time here in this world. Those crazy moments that filled our hearts with such overwhelming love.

From the moment you entered this world you lived life with a purpose that I am only yet understanding. 

You came to change. You changed me, your dad, your sisters, grandparents and so many more.

Anyone who had the blessing to know you left being touched in a way we still cannot find the words to describe. 

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People have told me you were an angel and thats why we only had you for a short time. I’m not sure if an angel is the right description but you certainly was my inspiration.

I watch the videos of you and look at the photos and its as if I can almost touch you. I try to convince myself that you are just in another room and try to hide my heart from the truth that you have gone. I play the clip we have of you laughing and close my eyes. Its as if for that moment you are right there beside me. I hear your laughter, I feel your presence.

I still don’t understand why we had to lose you. If there is a bigger picture I cannot see it. I am so thankful for my faith as its the only thing that gives me hope. The promise that we will be together again.

 livvy3

Your sisters are so grown up now. Kennedy is preparing for university next year. I tease her about leaving home but its going to be hard. Every since I lost you I am so scared for them. I want to wrap them up in cotton wool and keep them safe.

Do you watch over them?

They all miss you so terribly each in there own way. Brodie hurts desperately she misses her partner in crime so much. I remember how wherever we went she shared the moment with you. Pushing your wheelchair so you could see things.  Do you remember the penguins? How you loved to sit and watch them. You in your chair and Brodie by your side. Dad and I was convinced we were never going to be able to leave. You were transfixed, giggling as they splashed into the water.

I still can’t believe its been five years, my heart still feels like it was yesterday. So raw inside. 

Grief is a funny thing, I don’t understand how its supposed to work, “time is a great healer” is the worst lie I have ever heard.

IMG_0455Livvy1

I often find myself wondering about heaven. Is that crazy? I wonder what its like there for you. I take comfort from the fact that my grandparents are there with you. I know Grandad is looking after you for sure. I remember saying to your dad when your were diagnosed how much I wish he had been here then. How he would have been your best friend, the hours he spend teaching me to read, count and write would have been there for you too. He would have learned all about Rett Syndrome and all about your therapies. I know that you are free from Rett now but I do hold the fact that he is there with you in my heart.

 

These last few years your best friends have joined you. I hate that their parents are feeling this agony but I know that between you, Ryan and Rachel there is a lot of laughter in heaven.

 

Livvy this is so wrong. I should be lying on the sofa right now holding you in my arms. You should be sending sweet looks over to your dad for his chocolate.

 

Its all so wrong but its whats happened and what we have to face. 

 

You and your sisters are my inspiration. You all are the reason I wake each morning knowing how blessed I am.

 

I miss you honey so much it physically hurts but I am trying so hard to make you proud. Trying to make a difference in the lives of others just as you did.

 

You are my inspiration, my hope!

 

Livvy five whole years has passed since that fateful morning. I still have flashbacks now.  Could I have done anything?  Why my girl?  Why my daughter?

 

I have no answers.

 

But regardless of the whys I still give thanks.

 

I am so thankful that I got to be your mom.

 

 I am so thankful for the nine years I got to love and care for you.

 

I am so thankful.

 

I miss you my beautiful girl and I will continue to miss you until we are reunited.

 5 years too long xx

My heart beats to a broken drum.

My life’s jigsaw will alway be missing a piece.

My beautiful, adorable minx how do we survive with out you?

I am trying my very best.

What I would give for one more day, one more moment.

Five  years missing you , is five years to long.

I love you my baby girl.

My sweet precious Tinkerbell.

Until forever.

I love you to the moon, stars and back again.

Mom xxxx

 

 

 

 

9 thoughts on “Dear Olivia – 5 years too long xxx

  1. Karina

    Your words struck a chord with me, you put them so much more eloquently than I could. I lost my son too almost 6 years ago now. He was 13 and had CP with many other complications.
    Just wanted to say thanks for sharing. It’s so tough carrying on with what feels like a part of your soul missing.
    Sending you lots of love and hugs
    Kaz x x

    Like

  2. Thank you for sharing Olivia’s story. So terribly sad to lose such a beautiful child. It must seem like yesterday and I suspect it always will.
    The gift you have given to Olivia is to live on through your writing. Every day someone new will not only be saddened by your story but also inspired and enriched by it. I certainly am.

    Sending a big hug xxx

    Like

  3. Al Dickinson

    I feel only a shadow of your pain yet I am filled with tears, your words will fill all Rett parents with sadness knowing that we are all scared of losing our daughter’s, our angels as you have lost yours.
    You have had the strength to write from your heart despite your loss, thank you for sharing your tender and personal memories
    You h

    Like

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