Rett Syndrome is a devastating condition

But let me get something straight our girls aren’t.

They are so far from devastating that you could possibly imagine.

They are strong and courageous.

Cheeky and mischievous

They have ideas and dreams.

Have crushes and favourite’s.

They aren’t devastating they are simply amazing.

Livvy and her Rett sisters are my inspiration and my strength

If they never give up why would we?

I will do all that I can to cure these beautiful amazing girls from this devastating condition.

Join me in fighting the devastating and embracing the amazing.

A big thank you to my friends for allowing me to share their beautiful daughters with you xxx